On the edge and toppling off....

The sun is out!!!!! The sun is out!!!!!!!!! And it was suppose to be cloudy all day.

I don't know how you did it Alex, but I'm getting those cookie out to you right now

Wow!!!! Alex, you're good! :-D

Gosh Izzie, you are a wonderful friend and I love you bunches. But you know that. I wish I could make your pain go away. You know I would. Much love and prayers come your way.

xoxoxo

I hope you're feeling much better as the day goes on Izzie. You're in my thoughts.

Wishing you all a wonderful day -

Hugs to all here...

((((Hugs)))) to all from here as well.

Izzie

I hope you are feeling better by now. Just wanted to let you know I am thinking about you.

I bought 4 new pillows on Sunday.

Thought of you :wink:

There will always be a fluffy one for you.

Hey hey

Jodie - thanku - hope all is well with you and things are improving for you.


EBGirl - thanku too - glad you have new pillows - and hope your HIM fluffs them regularly How is BrendaLee doing? She OK? Please say hey to HIM from me - have missed seeing him around.


I didnt get a call back from the doc today - he's supposed to be sorting the IM steroid injection out ... but.... well, I am feeling a little better now which is good - joints still a problem but not nearly in as much pain as before. Still NOTHING about the house! Hey ho - will need to start pushing a little on that now methinks - I really need to move!



Thanks everyone x

Had the steroid injection Hopefully it will kick in pretty quick and all be good again.

Pushed about the house sale today with the estate agents and solicitors - there is yet another delay..... we're all getting a little nervous now that this is going to fall thru - got to remain patient and positive

About to have a massive thunderstorm - which is nice - except if the power goes out! Am watching the sky turn black and there's a kinda orange glow between the bright sky and the black clouds pushing the brightness away - looks amazing. Have been told it hit the town about 20 mins go - can hear the thunder so will go and watch from the porch for a while (love a good thunderstorm - it's the moving of tables and chairs upstairs!!!!!!!!!!!!!!!!!!!!!!!!) :wink:

Oh, how I love a thunderstorm!!!

Pulls up a chair next to Izzie :-D

Glad you're feeling better girl.

Izzie

Hope the steriod injection does wonders . You deserve painless days.
Things are going better for me but sometimes stress seems to get the best of me. I know I should not worry about things that I have no control over. My brother is buying dad's house. So I will just be glad to get that done with. Hope your house will be sold soon. You just need to start a new chapter in your life. Take care hun.

Hey Jodie.

Thanku. It's hard to get the stress under control when it doesnt seem to ease up - it's getting perspective about what you can and can't do about things and whether the problem is worth the effort of the "brain power" involved. I understand the feeling so I do sympathise with you and hope you are able to find of way of acceptance of the things that can't be controlled. You can only control your reaction to them.

I have further delays on the house... and a feeling that all the impending work/school/divorce/house/kids etc etc blah blah will happen at the same time. So.... will see what happens and in the meantime, I'll just try to get the body fixed up so I can deal with the mental stuff when it happens.

Take care Jodie - will be thinking about you too x

Thinking about you both ((((((Izzie & Jodie))))))), wishing you stress free days to come.

Hey folks

Feeling a little better after my steroid injections - seems to be having the desired effect, a few stiff joints still but I am certainly able to move around much more easily. No, I am feeling quite a bit better - it's more than a little bit.

I went out with Tulip on Saturday - first time to the store. I had gone out previously last week to go into town - but - didn't like to come back and tell y'all I had bottled it. I did go and have my hair cut (ahhh - thank goodness) but couldn't make myself go into the town and walk around. However, managed it with Tulip and went to 4 stores and coped no problem. We were only out a couple of hours and I was exhausted in the evening. But I did it, thanks to Tulip. (I know it may seem silly - but I'm nervous about going back out into the big wide world having been in a room for months! Please just bear with me on that - I'll get over it)

Yesterday was my little boys birthday - he turned 11! Tulip and the kids came over and made it as special a time as possible for him - we all laughed with various things going on, culminating in Tulip and the kids having a grass fight. Have attached the link to some pics of the little guy with Tulip and the kidlets.

http://www.able2know.org/forums/viewtopic.php?t=111721&postdays=0&postorder=asc&start=5090

Last nite - I had another of those "black out" sorta episodes. I think I must've been very, very weary - can't quite remember getting to my room, just knew I was totally shattered - 4 hours later I had to force myself awake - which was a bit weird because I felt completely conscious in my head, was telling myself to waken - but my eyes wouldnt open and my body wouldnt move. Bit like being awake in a dream if you see what I mean. I did tell a friend and they mentioned telling the doctor as this is the second time it's happened, which I will do, but I was just wondering if anyone else gets like that. In all honesty - I suppose it might be normal - maybe that's what you are supposed to feel - or maybe folk feel that every day who are really incredibly tired. I suffer with fatigue with the SLE and am always "tired" "fatigued" - but I guess I'm not used to that sort of overwhelming tiredness and I'm sure it must be that. Then this morning - I woke at 8am having slept for 4 hours - just closed my eyes again for a minute - and next thing it was 11am.

I still feel "tired" in a refreshed sort of way (yep, I know that makes NO sense whatsoever - in fact it's a ridculous statement) - the body is tired but I don't feel like I need to go lay down and sleep! I feel as tho I've done the Round The World Yacht Race - but actually haven't really done much at all. However, I am doing more and more each day - and am a little stir crazy now so trying to do more to get my energy levels up for returing to work.

Anyhoo - was just wondering!

Seeing the surgeon on Thursday and hopefully get the all clear to drive. I think I could drive now as my ankle is much improved and if the urge suddenly takes me - will strap my ankle and "do it"

Not sure what he will say about the left foot which has obviously not worked but will wait and see on that. Have physio again on Friday.

It's half-term next week and I've said for the little fella to come and move back home which he is really looking forward to - albeit we are "box Chez Izzie" and he has no bed. Need to get one back in his room and then we'll be set.

Still NOTHING about the house move

Hope everyone is well. Thanks for listening.

Glad to hear you're feeling better. Don't worry about conquering the big bad world all at once -- a couple of hours is a great start!

I would mention the black-out episodes to your Dr though. Just to rule out any problems (medication interactions?)

Enjoyed the birthday photos! Re: the lack of bed -- maybe your son could "camp out" if a comfy air mattress could be found?

g'morning, Izzie.

Congrats on getting out and about a bit. I'm glad the steroid injections are working on improving your mobility. Also, good job on Tulip for whatever little nudges she's giving you on venturing out, although I'm not surprised it was exhausting. It's hard to find the balance between doing and over-doing, isn't it?

I do think the blackout episodes need some follow up with your doc. If this is the second episode then it isn't a fluke. How far apart were the two episodes? I know you haven't been sleeping much and it just could be your body taking what it needs, but it could be any number of other things too. Definitely worth discussing with those who are familiar with all your meds and treatments. It may be a good idea for you to keep a sleep log between now and Thursday. Nothing obsessive, just a note of when and how much you're sleeping so that you have real information to discuss. If the episodes continue then you probably shouldn't wait until Thursday. At the same time you very well may just be succumbing to the need to get more sleep than you've been getting. Four hours here and there isn't much sleep when you're trying to heal. That extra three hours from 8 to 11 that left you feeling 'tired yet refreshed' may be the very thing you need to do more of.

Also, (sorry if I'm sounding like your mother hen here...) start putting Izzie first and let those who would pull your energies into other areas fend for themselves. Your sons need to know that you love them (I'm sure they do) but the rest of it should be a far distant 10th place with Izzie being in places 3 through 9. You offer tremendous support to many, many folks and I know it all comes from your heart but you can't put everyone ahead of you and your recovery. I'd take the blackout as a warning that's saying you aren't taking very good care of you.

Giant hugs to you, MizIzz. Let yourself rest -- you need it.

I second all JPB said Izzie - You are a dear soul...please take care of yourself.

Hugs,
Missy

Hey mismi -- I can be mother hen and you can be auntie hen!

That'll work!

I am in a mess.... I need help please

I have jut got a call from R.

R has a team of 7 staff members - they were put in to support R over the next however many years and were picked specifically, and supposedly trained and supported, so that they would be there for the duration.

R has just been told the house manager and the other guy who is his keyworker are going. In fact, H (his keyworker who he is closest too) went on annual leave 2 weeks ago and is not returning to the house at all. R will not see him again. The house manager whom I have spoken to has no understanding as to why this is happening, has not received an explanation, but the company have told him he is being moved to a different house.

We have not been told any of this by anyone - it must have been planned - but we have not been informed. R has been told today by another staff member.

I cannot get hold of the social worker and the head of the company is appararently on holiday today.

I spoke to my ex who says R will just have to put up with and get used to people not being in his life and that he realises this is a company and it's probably about money as there is no explanation forthcoming. He feels R just has to get on with it. He told me not to be emotional about it.

I don't understand again! I knew this would happen again. I'm angry, my son's heart is breaking again - he is saying, "why do they hate me, why doesnt anyone want to be near me". The house manager is totally gobsmacked - he has no understanding either of why this happening. He's told me he will make calls and try and get someone to call me. He doesn't believe this to be in R's best interest but he has no say in the matter.

I don't get what's going on again. Why is this happening again. R has been doing so well. Now, it's just all over again. We start from scratch again.

I'm so angry - I can't hold it together! I don't know what the hell to do and no-one is there to talk to - not in the company or social services. Why is this happening again. He's only been there four and half months. The staff were picked for this specific purpose of staying with him....