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osso's eyes 3 - continuation of saga

 
 
Reply Thu 10 Jun, 2004 10:22 pm
For those who wouldn't mind the drama of vision loss emergencies - here are some links for saga one and then saga two. I actually left out, gave people a rest, from surgery three. Back now with new stuff, possible useful for someone besides me.

Ossobuco's Eyes (I don't show up til page 3) whatta week

Osso's eyes 2

While I wait to deal with the Right eye, I am still in flux with Lefty. More in next post.
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littlek
 
  1  
Reply Thu 10 Jun, 2004 10:29 pm
!
waiting!
!
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ossobuco
 
  1  
Reply Thu 10 Jun, 2004 11:00 pm
It's hard to summarize those two threads without tiring myself out.
Let's say I have troubled eyes, and that my life long eye disease (RP) is oddly enough not progressing badly at all, is not expected to get worse, and none of the docs are worried about it.... but it has set the stage, as it were, with flimsy lens-holding, for recent troubles.

Sorry, I can't bear to recap, just want to report the latest.


After eye surgery 3, which was to fix the Cat Eye (when certain of the medications were stopped and the pupil dilation was allowed to shut down and the iris didn't land right... I had gotten a real life, as opposed to cosmetic lens, cat eye, not so funny as it lets in a lot of glare and messes up focus) - anyway, after that, I have been on a wild regimen of eye drops.

Some drops make you larger, some make you small.

Well, really, one very expensive and powerful one lowers eye pressure and causes inflammation in my eye, yet another story, and the other, a steroid, fixes the inflammation but increases fluid pressure in the eye. A perfect circle.

We (doc and I) had weaned me from the steroid ever so gradually, since that is not great long term, and I was doing fine.
until
until
about ten days ago, when I noticed, reading in bed, that my focus was weird with Lefty.
Backing up, since my new lens is immediately back of the iris, there is no flexibility in the vision. I see at something like 6 3/4" from the page in focus and not at 7" or 6 1/2, it has been very particular. With the right eye I see fine at about twelve inches, with a fare range either way, since that eye is more or less normal for now.... so I use that one. But since I am paranoid, I check out lefty and ten days ago, damn, I saw blank spots in the letters in words.

Now I am no dummy and I know blank spots are not good. A sign, for example of macular degeneration, which let me tell you is the last thing I need, since that is mid eye and I am already missing a lot of the outer vision with the RP. But I thought macular degeneration was slow.

My first reaction, after all these months of being a good girl and the best patient ever was to ignore it, wait til morning. It was still true in the morning, gulp, but then I waited til after work, and it was the same, and so on.

Slowly I got to the idea that I would never see as well again as I did back a few months ago.

I called the dr's office but she was off for the weekend, and I wrote down the emergency number for calling if any change of vision, but didn't call it as it didn't get worse (woman newly in denial, after all these months). Still it was holding steady, as it did 'til I went in yesterday, and Louise, the doc, said, WHAT? As is her way, she is very loud. She has no bedside manner, I love her.

Ok, her best guess is that it is Cystoid Macular Edema. This is not swell, but better than what I was thinking. Yes, I have to go down to Santa Rosa to see the retina specialist, that'll be Tuesday, and he will run all these special tests (I looked them up, involve fluorescein dye) and perhaps treat with a shot of cortisone next to the eye. As horrible as that sounds, I've already had one, in one of the surgeries, doesn't hurt if you have the right anaesthetic, so of course I am wondering about that. But I am sure they don't want you to jerk about with a needle in the eye area so I am not frantic about that yet.

Skipping on past the horrible, my vision is better today. Less islands of blank. Which my pessimistic self didn't expect, that it would get better.

So, what to learn from this - if you or a loved one is ever looking out at a page of letters with some small blanks in them, yes, it is a sign of something in the macular vision. Maybe or maybe not degeneration, it might be as we think is happening with me, edema, or post operation swelling. Or as Louise intimated, post-f*cked with eyes.

Here's a link -
Cystoid Macular Edema
0 Replies
 
littlek
 
  1  
Reply Thu 10 Jun, 2004 11:04 pm
oh, sweetie, I wish I could do or say something that might help. I can't believe the bad luck you've had with all this.....
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ossobuco
 
  1  
Reply Thu 10 Jun, 2004 11:28 pm
Ah, littlek, you are sweetie too. I'm okay, I'm actually cheered by the latest, as my vision is better tonight than in a month or more. Ergo, improvement is a possibility for people with this problem, but most immediately, me. Things are much clearer. Loss is so gradual, one adapts.





I have to add, for the new here, that I see ok with the right eye for now, but will have to have cataract surgery in it this year, at least for insurance reasons, so I don't have to pay the deductible again, and besides, it is within range of needing surgery, and my ophthamologist assumes I will have a similar instability of existing lens, with the potential complications. Da do da da.....

This is a drama that is particular to me and important to me, but the feelings I go through are similar for other people dealing with other matters.
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BumbleBeeBoogie
 
  1  
Reply Fri 11 Jun, 2004 12:28 am
Osso
Oh, Osso, its a bummer to hear that you are still having problems with that pesky eye. How I wish your cataract surgery had as good an outcome as mine did.

The only annoying thing I found after my surgeries was that with the cataracts removed, the floaters in my left I were clearly visible again. That's such a minor annoyance compared to what you are going through.

BBB
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ossobuco
 
  1  
Reply Fri 11 Jun, 2004 12:30 am
Ah, floaters are only a sometime pleasure for moi.
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dlowan
 
  1  
Reply Fri 11 Jun, 2004 01:11 am
DAMN!!!
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Noddy24
 
  1  
Reply Fri 11 Jun, 2004 06:13 am
Osso--

How unfair that you are paying for clarity of mental vision with physical problems. Hold your dominion.
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timberlandko
 
  1  
Reply Fri 11 Jun, 2004 07:59 am
Bummer, Osso ... damn, I sure hope things go better for you real soon.
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edgarblythe
 
  1  
Reply Fri 11 Jun, 2004 08:02 am
I am also here to wish for you the best possible outcome.
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msolga
 
  1  
Reply Fri 11 Jun, 2004 08:18 am
Osso, I'm so sorry there are further problems. It's so disappointing & you must be sick & tired of the whole thing! All the best to you!
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sozobe
 
  1  
Reply Fri 11 Jun, 2004 08:57 am
Yes, it's the tiring part that I first thought of -- one can gird oneself for a specific procedure, and get through it! Halleluiah! It's done! But when it's not..

Big hugs and best wishes.
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onyxelle
 
  1  
Reply Fri 11 Jun, 2004 09:17 am
Everyone has already said "sorry you're having such a bad time of it" - with which I agree. Everyone has already said "wish there were something I could do to help" - with which I also agree. I have nothing new to add in that regard,

however...

I have never thought once about my eyes. I've never worn glasses and I've never had a problem, but because of your post I notice that my left eye is (and we know I'm no mathematician) about 50% less focussed than my right - does this mean something to me? I really have no clue, but it does seem kinda straaaange. So thanks for getting me to 'see' something that I had no clue of.

And of course, I hope that things get better with your eyes Oss'ol girl.

I'm sending many many "fixed eye vibes" toward cali right this very moment.
0 Replies
 
Joeblow
 
  1  
Reply Fri 11 Jun, 2004 09:25 am
Me, too.
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Joeblow
 
  1  
Reply Fri 11 Jun, 2004 09:25 am
Me, too.

(Double post? Double the good wishes)
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Letty
 
  1  
Reply Fri 11 Jun, 2004 09:26 am
Osso, Things will be fine. Hey, I'm the resident witch and know about this stuff. Smile Just ask Diane.
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jjorge
 
  1  
Reply Fri 11 Jun, 2004 10:04 am
All the best from Rogue Island to a swell lady.


P.S. She's a GOOD witch Osso.

Listen to her.
0 Replies
 
ossobuco
 
  1  
Reply Fri 11 Jun, 2004 11:17 am
Thanks all!

Onyx, lots of people have one eye more myopic than the other one. Always smart to have an eye check, though, to have a record of vision over the years.
0 Replies
 
Vivien
 
  1  
Reply Fri 11 Jun, 2004 11:37 am
fingers tightly crossed and adding my thoughts and best wishes
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