7
   

Young cousin diagnosed with Non-Hodgekins Lymphoma

 
 
Noddy24
 
  1  
Reply Mon 14 Jul, 2008 05:07 pm
I'm not an expert, but poking something called a "diffuse cell cancer" with a sharp stick doesn't seem like a good idea--even if the sharp stick is sterile and brandished by a Master Surgeon.

Concentrate, don't diffuse.

Hold your dominion.
0 Replies
 
littlek
 
  1  
Reply Mon 14 Jul, 2008 05:13 pm
Above I mentioned (I think Confused ) that my landlady suggested she finish the process off with a cyberknife procedure in which lasers destroy the rest of the tumor after it's been reduced to a nugget. But, the family hasn't mentioned anything like that.
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JPB
 
  1  
Reply Mon 14 Jul, 2008 07:28 pm
diffuse just refers to how the malignant cells cluster (or don't cluster) within the lymph node.

Quote:
large cell lymphoma any of several types of lymphoma characterized by the formation of one or more types of malignant large lymphocytes, such as large cleaved or noncleaved follicular center cells, in a diffuse pattern.


There are different clustering patterns such as follicular (or nodular) as well as different cell sizes (large vs small), different cell involvement (B cell vs T cell vs any other kind of cell), different cell nucleus shapes (cleaved or lobed vs uncleaved).

THIS site has a pretty good dictionary of the different terms being thrown around.
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littlek
 
  1  
Reply Mon 14 Jul, 2008 07:52 pm
Wow, maybe I should print that. It's good and pretty dense. Thanks again.
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JPB
 
  1  
Reply Mon 14 Jul, 2008 07:57 pm
glad to help, k. Understanding the language can help make the discussions less scary.
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littlek
 
  1  
Reply Mon 21 Jul, 2008 08:12 pm
An odd bit of news. Some chemical in the tobacco leaf is being used as a vaccination against a patients of lymphoma cancer cells...... (haven't read the whole article)
http://www.boston.com/news/health/articles/2008/07/21/technology_uses_tobacco_plants_to_fight_cancer/
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littlek
 
  1  
Reply Tue 22 Jul, 2008 09:53 pm
http://www.crazysexycancer.com/

A friend of my cousin's is embarking an a 1000-crane project. She asked for help. My sister and I are happy to devote our slightly OCD hands to folding origami.
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Thomas
 
  1  
Reply Tue 22 Jul, 2008 10:03 pm

Your fellow kris got my attention with her film.
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littlek
 
  1  
Reply Sun 27 Jul, 2008 08:03 pm
A week ago, I saw my cousin at a wedding. A couple days later she was checked into the hospital with a fever. Had a really bad infection. They treated her and she's gone home. She emailed to tell me that and that she's begun losing her hair. Happily, her white blood cell count came back up after the fever hit.
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Izzie
 
  1  
Reply Sun 27 Jul, 2008 08:05 pm
Sending lots of love and healing wishes to your baby cousin. Much love to you LilK x
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littlek
 
  1  
Reply Sun 27 Jul, 2008 09:04 pm
Thanks, Izzie.

I've been keeping tabs on your travel thread. Unfortunately, I don't have anything to add! Will you be online while you are on the road?
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littlek
 
  1  
Reply Fri 1 Aug, 2008 10:09 am
I saw my cousin yesterday when she picked up her wig. She liked it and I think her standards have been adjusted because a) she is losing her hair, and b) she has received a few lesser quality wigs from former chemo patients.

She was in good spirits and more herself than when I saw her at the wedding two weekends ago. Her white blood cell count was above normal and she had a healthy appetite. She starts another week of chemo on Monday.
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Izzie
 
  1  
Reply Fri 1 Aug, 2008 11:10 am
((((((((((((((((hugs to you and yours LilK))))))))))))))))))))))))
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Diane
 
  1  
Reply Fri 1 Aug, 2008 11:30 am
Oh Littlek, I just found this thread and would like to add my good wishes to you and your cousin, who sounds like a very brave little girl, especially considering her mother.

She is very lucky to have you and the rest of the family for support.

{{{{{{{{{{{{{{{ littlek and little cousin }}}}}}}}}}}}}}}
0 Replies
 
littlek
 
  1  
Reply Fri 1 Aug, 2008 12:42 pm
I bet she feels like a little girl these days, but the world sees her as a young woman.

Thanks to you both.
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jespah
 
  1  
Reply Fri 1 Aug, 2008 04:10 pm
Good wishes to her, and to you.
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Izzie
 
  1  
Reply Thu 7 Aug, 2008 04:15 pm
Hey LilK

How are you? How's your wee cousin doing? Healing thoughts hun x
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littlek
 
  1  
Reply Thu 7 Aug, 2008 06:40 pm
I'm ok. She should be finishing up another week of chemo this week. I don't know much more than that. She may be getting more spinal taps, but I think she won't be getting another cat scan to check for shrinkage until later.

Thanks for asking!
0 Replies
 
jespah
 
  1  
Reply Thu 7 Aug, 2008 06:45 pm
It's usually, they do chemo for a few go-'rounds, then the scan, then they adjust, increase, decrease or change things and start it up again. They generally try not to miss a session, so if she's on an every other week deal, say, weeks 1 and 3 of a month, week 1 she gets chemo, and right before that has the scan, then on week 3 she might get more or less drugs, or different ones, but on the same schedule.
0 Replies
 
littlek
 
  1  
Reply Thu 7 Aug, 2008 06:58 pm
She goes every third week. Then she gets a low WBC count at some point between. Well, so far that's happened, but she hasn't had enough cycles to call it a pattern.
0 Replies
 
 

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