Shoot..big hugs make me cry...but I always feel better after I cry. You are in my thoughts as well Izzie.
Yep - feeling better now - no worries - no more whinging. Step at a time - Thanku.
Hugs to you Izzie, so pleased you're feeling fine. Will watch you with an "Eagle" eye.
Sometimes a hug and a cry is just the best thing.
Worked for Brendalee and me on Tuesday.
Oh I'm sorry EBGirl - hope you weren't crying for sad stuff for you...
oh that doesnt sound right at all... oh, you'll know what i mean tho.
well - yep - a good cry works - guess that makes us the wimmins - (well I know a min who cries too!
)
Sending you belated (((hug)))
Please excuse my earlier posting - I was feeling particularly "pained" - it's eased a little and Texas Bubba has got me laughing again. Once I started crying (before he was here - just couldn't stop - stupid really but hey)
Hope Brendalee is k now also.
Thanku x
brendalee's dad died recently, and she needed a good cry. couldn't around her mum - had to be the tough woman - not daddy's baby girl who needed to have her sad time.
so we hugged, and she cried, and we hugged some more, and she and set hugged, and she cried, and it was a tiny bit better
~~~
soooo, you know you've always got a virtual hug coming from this direction - right? cuz you do (and Diane will tell you Set's a good hugger)
Izzie - sweet girl - you are strong and encouraging and I am constantly amazed at how well you deal with your lot. Every once in a while - even more - it's okay to cry to be overwhelmed. But what I likes best about you is that you move on and get on with LIFE. You don't waller in it...and that is a wonderful thing. I am proud of you...but never be afraid to let us know when you struggle...we all do - and we want to bear up where we can for you - okay?
big hugs to you hun...
I am going to bed...I just had to let you know.
misxx
Oh how terribly sad and hard for Brendalee - it's so hard to be strong when expected to be strong, when all you feel like doing is falling apart for a while and getting the emotions out - and then some.
Thank goodness she was safe enough to do that with you and HIM. Bless you guys.
Thanku.
(perspective gained a little too)
Hugging you.... just because...
Thanks Izzie - I like hugs a lot, my own dangself
~~~
Now, are you going to have a good night's sleep?
Yeah - shortly - have taken my potion and hoping to shuteye soon. Hope you sleep well - get HIM to hug you big x
Sweetest of dreams to you Izzie and I'm happy to hear you're feeling a bit better. Never be sorry because we all have tears to share every now and again.
(((((((Hugs)))))))
Glad to hear your feeling a bit stronger. You cry as much as you want, you know I do and it does help. Let the wheel turn and life slowly gets a little brighter. Yeah I know I am great a giving advise and useless at accepting it myself.
Pain be gone, rub that tiger balm girl! Just becareful where you rub it though!
Take care X
Hey everyone.
I guess I'm officially "in a flare" now - it's beena while for a proper flare, usually an on off on off thing - just struggling to move at all - no use of my left arm and swollen everythings! Have contacted the hospital, GP, rheum nurse and immunologist sec. Now waiting for the call backs. One will have to call back
Can't carry on like this - it's bringing me down too fast. So, on the good 'ole "heavy duties" - Texas Bubba still here so he's keeping me sane. Damn damn disease. Don't like being grumpy!
Oh Izzie...I hope they come through with something to help quickly - I wish I could be there to help you too. So glad that Bubba is there to help you. (((IZZIE)))
you never seem grumpy - but I know - take care of yourself..you are in my thoughts and prayers.
Ready, willing, and almost able to hop on a plane to take over for Bubba when he leaves. I'll grab mismi and we'll come over and be silly 'round the clock. Between the two of us I'm sure we can come up with a Texas schtick.
Oh you gals would be great here - wouldn't that be a blast.
Haven't heard back from anyone yet - and being Friday - doubt its gonna happen either.
I spoke to my boss today about work - she's great and isn't putting the pressure on for me to return until I am ready - I'm not due to return until June 12th (part-time initially) - it's not them that are pressuring me - it's me - starting to feel guilty about not being there - we've decided that we won't involve occupational health as they will insist on risk assessment etc blahblahblah which creates more work for everyone - at the moment tho - am going to try not to think about that side of stuff until I can get the body in a better place. Thing is - I know as soon as I'm "under control" that I will be raring to go again and will go in with a good attitude.
On the up side - walking is easier when the hips actually move - and Bubba has given me a wonderful foot massage - bless him!
Spoke to the solicitor today about the house - still no movement and they are going to chase again on Monday. Need to move on from here now but it will happen when it happens. Hoping it will happen soon.
Car is sitting outside..... that's very exciting - but can't attempt it yet. Good incentive to get well tho!
Hey everyone
Well - have been lost tonite without my internet connection.
Spoke to my GP tonite and he is calling my immunologist on Monday to see if IV steroid infusions can go ahead without having to wait to see the consultant. He spoke to me about going back on steroids (prednisolone) - something I haven't had to endure for the last 10 years. I can't do it. I would only consider this again if my life depended on it - which is doesn't right now - so - nah nah nah. The infusions have worked in the past though they are a bit of trial to do - but if the end result is good - and quality of life is improved - then that will be coco. Don't know if the consultant will agree to it (he's not my regular immunologist so
. who knows. Anyhow - gotta keep taking the heavy duties over the weekend and tho I have to keep moving - not do anything to work the joints too much. The balls of my right foot have swollen badly and nodules in my heel. Knees, hips and shoulder and ankle are still out. Fatigue is a bummer.
Just so frustrated right now - it's all been going so well - but as with Lupus and Rheumatoid - you never know when it's gonna knock you sideways and take your feet from under you. I have been lucky so far. Guess I'm due for the next test in character and so far - failing miserably. Miserable git that I am right now. I feel a little better in my head - but that's up and down too right now - one minute I am fighting it and the next I am worn down - it's an unknown quantity how long a flare can last - I suppose I had been taking it for granted as I have been free from a major flare for many years. I am a lot luckier than most - this will pass. It's timing. The only person other than my immediate family to have seen me struggle with this is Charlie. We went camping many years ago - it was hysterical. I wasn't too well when we left - but that never stopped me doing anything really - so we picked up the tents one day and off we went. Well, you have never seen anything so funny as Charlie attempting to walk me from the tent to the shower blocks when I couldn't put one foot in front of the other - and then having to climb steps when we got there, leave alone lift my arms to have a shower. It was one of the best times we had - the kids were amazing - the husbands were
. enjoying the alcoholic beverages, the dog stole and buried the cheese, Charlie's hubby couldn't get out of the big brown and orange tent (with curtains - a 60's throwback borrowed from his parents - well after all, having served in Oman and supposedly being able to put it up with his eyes closed - and my ex- hubby really not having a clue - it was put together inside out!!!!!!!!) Anyhooooo - he couldn't get out one nite - so ripped his way out - claiming he needed a wee! Nope a few beers have NOTHING to do with it at all. Then my school friends who I hadn't seen in about 15 years (we were at boarding school together) turned up in a car, at gone mindnite, tentatively calling out my name as they drove between all the tents - which was mad. Then the rain started - but we went to the beach (Woolacombe campsite) with the obedient dog and the dog-handler - at which stage the dog ran off and made a lot of friends whilst Charlies hubby was running after him at a rate of knots down the beach. Then we had to carry everything back up the dunes and cliff - well
so not me and Charlie. We needed a cuppa! And 6 gins! And then the "outlaws" turned up - driving not being one of Charlies FIL strong points - especially when the car is NOT switched on. Charlie and I sitting in the back - incontinence pads a requirement at that stage. Little fella learned to whistle that holiday - drove us all quietly insane - but funny - and he learned to sing "Rhinestone Cowboy"
or in his words "Nine Stone Cowboy". Good times.
Oh so why am I telling you all this - well, 4am and waiting for the meds to knock me out (morphine's a winner usually) and remembering the best times. It's Charlies birthday today - you know, I never knew you could love another human being like I love her - she is my soulmate - completely and totally.
I talked to Tulip tonite too. Oh Tulip - thanku - you understand more than most - not just all this - but you understand whats going on in my heart and the loss that is sinking in. Thank you so much for calling me - I needed to talk and you pushed me into doing just that and were there giving me light. You don't realise how much that meant to me tonite. I was pretty darn honest with you, as you are being with me - it's good to share that with you and you are right - we will get thru what we have to - even if we have to go start the salsa lessons a? Bless you girl. Bubba heard what I was saying to you - but he doesn't get what I'm feeling. He thinks cut off is a good plan. I can't. If I could, I would. Not that easy is it.
Well, this is cr*p isn't it - I'm not even talking in my room, I talking to my stupid laptop
and yet I'm still talking to you all and will have to post tomorrow. If I don't post how I'm feeling - it all keeps going round and I need to get it out.
Bit of a tough time with the BigBoy right now. Nah - can't do that one now tho. That's a heart hurt sitting tight right now.
One minute I am tickety boo - the next bleugh - not like depression - just sheer frustration - want to move on, keep moving on and not physically able to do it. Frustrating as hell.
OK - gotta get the positive going
Oh Izzie, you just keep talking whenever your heart desires and we'll be listening.
Who you callin a laptop?
Hey girl, my warm thoughts are always with you and my well wishes for you are abundant.
(((((((((((Izzie)))))))))))
I know people who name their laptops.
