141
   

Surgery--Again

 
 
Izzie
 
  1  
Reply Mon 15 Dec, 2008 11:52 am
@Roberta,
Here with ya babe...

not that I can help you either...

yep, you gotta get another social worker - that one we will dump for you - he/she just didn't make the grade I'm afraid. So s/he's gone and good riddance.

Hard to get things sorted when you haven't the voice to make yourself heard or them listen. That's pants.

How is the vocal... any better?

Nope - you're not helpless but it feels like it at times. If you're anything like me, being mad (angry) at the system suddenly kicks in unexpectedly - I seem to achieve more then when I am little rattled about the injustice of the situation, whatever it is... and then a positivity drive takes charge - not consciously, just does when I feel as tho someone has listened or I regain control of my situation.

I hope you find that something kicks in hunni - and the energy will come from somewhere - I understand the non-functioning bit - I'm with ya!

You've got a dominion to hold - you will do it. I know you will.

x
0 Replies
 
roger
 
  2  
Reply Mon 15 Dec, 2008 12:23 pm
@Roberta,
Ensure makes everyone gag; that's why we give it to little people who can't fight back.
0 Replies
 
Butrflynet
 
  1  
Reply Mon 15 Dec, 2008 01:29 pm
Someone on this New York State Ombudsman list should be able to give you some advice on what's next. They even have their email addresses on the list so you'll be able to easily express your needs via email not have to struggle to have your sore voice heard.

http://www.ombudsman.state.ny.us/Whois/directory.htm

dlowan
 
  1  
Reply Mon 15 Dec, 2008 02:33 pm
@Butrflynet,
I hope that helps.

((((((((((((((((((((((((((((((((((((((((((Boida))))))))))))))))))))))))))))))))))))
0 Replies
 
alex240101
 
  1  
Reply Mon 15 Dec, 2008 02:55 pm
@Roberta,
When I was out of town, a few weeks back, I stopped at a tiny Mexican market. From my understanding, they lady who owns and operates this place, cooks and sells ,different meals, every day. The day I stopped in, tongue tacos were ..featured. It wasn't bad. Perfect amount of tongue, cilantro, lime juice, and a couple ingredients I didn't recognize.
0 Replies
 
ehBeth
 
  1  
Reply Mon 15 Dec, 2008 03:00 pm
@Roberta,
please email these people

http://www.gildasclubnyc.org/

Quote:
Networking Groups and Lectures help our members access valuable information about medical, legal, financial and other specific aspects of the cancer experience.
0 Replies
 
littlek
 
  1  
Reply Mon 15 Dec, 2008 04:44 pm
Roberta, that whole social worker thing epitomizes the whole **** end of the health care system in this country. This should never happen to anyone. Ever. The man should be shot and so should anyone who backs him up.
0 Replies
 
Swimpy
 
  1  
Reply Mon 15 Dec, 2008 09:36 pm
Boida,

Contact Charles Schumer
http://www.senate.gov/~schumer/SchumerWebsite/contact/webform.cfm

He should be able to help you.
0 Replies
 
Roberta
 
  1  
Reply Tue 16 Dec, 2008 11:35 am
Thanks for the links and the support.

I'm seeing my radiation doctor tomorrow. I have a few choice things to complain about. Will it do any good? Doubt it. But I'm gonna complain anyway.

Izzie
 
  1  
Reply Wed 17 Dec, 2008 12:49 pm
@Roberta,
How'd it go with the rad doc? Did you kvetch well? x
roger
 
  2  
Reply Wed 17 Dec, 2008 01:00 pm
@Izzie,
Izzie wrote:

How'd it go with the rad doc? Did you kvetch well? x


You have to ask?
0 Replies
 
littlek
 
  1  
Reply Wed 17 Dec, 2008 06:12 pm
She's around here somewhere......
0 Replies
 
Roberta
 
  2  
Reply Wed 17 Dec, 2008 06:14 pm
Embarrassed to admit that my kvetching was subpar. Why? I had a voice. My first day with a voice! I was so happy to hear me, I couldn't work up a full-blown kvetch. However, I have to say that a half-blown kvetch from me is probably is as good as lots of other people's best efforts.

According to the docs, I'm doing fine. Right on schedule. According to me, I can't stand the throat pain and the limitations on eating. Also the weakness and fatigue.

I asked to speak to a social worker. She was helpful. Got some great contact info and leads. She found me a place that provides free counseling for depression. Gotta follow up.

All in all, not a terrible day--until I got home. I thought I didn't have to go back to Bellevue or the cancer clinic until January. Thought I was free for a while. Found a notice that my brain will be MRIed this coming Monday. Not terrible, terrible. Then I read on. I have to pay a substantial amount (by my standards) for the test in advance. You can throw in your own dirty words here. I already threw in some choice ones.

Sigh.
littlek
 
  1  
Reply Wed 17 Dec, 2008 06:17 pm
@Roberta,
grrrrrrr.
0 Replies
 
ossobuco
 
  1  
Reply Wed 17 Dec, 2008 06:20 pm
@Roberta,
Worry about that tomorrow, not tonight (says Scarlett O'Hara).

I'm so glad about your voice, your voice! your voice!, and the social worker.
0 Replies
 
ehBeth
 
  1  
Reply Wed 17 Dec, 2008 07:54 pm
Good news on the helpful social worker and The Voice!
jespah
 
  1  
Reply Thu 18 Dec, 2008 05:11 am
@ehBeth,
Positives! Yay!
dlowan
 
  1  
Reply Thu 18 Dec, 2008 05:43 am
@jespah,
VOICE????


Yay!!!!!
0 Replies
 
margo
 
  1  
Reply Thu 18 Dec, 2008 05:58 am
Generally - small "yay"
0 Replies
 
Tai Chi
 
  2  
Reply Thu 18 Dec, 2008 08:13 am
Finally! Roberta is Able2Kvetch! Yay!
0 Replies
 
 

Related Topics

Two Sides of the Family--One Building - Discussion by Roberta
It's Roberta's Birthday again! - Discussion by dlowan
Happy Boithday, BOIDA! - Discussion by Izzie
The Kvetch Thread - Question by Roberta
BOIDA - HAPPY BIRTHDAY! - Discussion by Izzie
Happy Boithday Boida!!!!!!!!!!!!!! - Discussion by dlowan
Happy Boithday Boida!!!!!!!!! - Discussion by dlowan
 
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