141
   

Surgery--Again

 
 
Roberta
 
  1  
Reply Tue 9 Dec, 2008 12:06 pm
Back. Good news/bad news. Good news: The doctor wants me to be completely recovered from the radiation before the surgery. The surgery is the bad news. The tumor has to come out. It will happen in February.

What's the title of this thread? Thinking about changing it to "Surgery--Afuckinggain."

Have to go back tomorrow to see a neurologist. It was either tomorrow or March. A little late if the surgery is scheduled for February.

Tired.

Deb, The hangman's noose gets me--once in a very great while.
Butrflynet
 
  1  
Reply Tue 9 Dec, 2008 12:38 pm
@Roberta,
I have a good feeling about this, Roberta. Look how well Ted Kennedy is doing after similar surgery. He's already back at work and creating legislation for the nation's new health insurance coverage system.

Even his missing patch of hair has grown back and he's looking as handsome as ever.

Have any of the doctors addressed your prolonged nutrition intake problem? We need your body to start building up some reserves for the next battle.

By the list of games, it sounds like you spend time on the Pogo site. I play there too and enjoy a lot of the same games you mentioned.
0 Replies
 
dlowan
 
  1  
Reply Tue 9 Dec, 2008 02:42 pm
@Roberta,
Well, a bit of a break for your poor body.....but it's be nice if you felt you WERE recovering from the radiation.

Managing to get much down, dollink?

I am surprised the hangman ever gets you!!!
Roberta
 
  1  
Reply Tue 9 Dec, 2008 04:34 pm
@dlowan,
dlowan wrote:


I am surprised the hangman ever gets you!!!


Nobody's poifect.
Izzie
 
  1  
Reply Tue 9 Dec, 2008 04:55 pm
@Roberta,
Roberta wrote:

"Surgery--Afuckinggain."


or

"Surgery--Afuckinggain, Pain In The Neck, Not Tonight, I Have A Headache"

to be followed by

"Better Out Than In"

and finally

"I Survived, No More Thanku Very Much, Enough Already"

so.............. we'll all look forward to the start of that last thread.

Meantime.... cr*p and b*llocks and all those cuss words I shouldn't write...

there's a big part of me wishes you were gonna have the surgery tomorrow and be done with it, but then you need to be much stronger before you can do that.

"Noboidy Said It Was Easy" - but you're getting through the days girl - and we'll be here to with you right the ways thru.

Hope the neurologist with give you positive info to work with - can you ask about the radiation side effects too????? Why is it taking so long for them to go away?

x
Izzie
 
  1  
Reply Thu 11 Dec, 2008 06:50 pm
@Izzie,
Checking in with you in the morning Boida. Rest up gal. Hugs. x i gotta zzzzzzzzzzzzzz. x
Izzie
 
  1  
Reply Fri 12 Dec, 2008 02:56 am
@Izzie,
xox
jespah
 
  1  
Reply Fri 12 Dec, 2008 05:14 am
@Izzie,
G'morning Miss R.
0 Replies
 
Rockhead
 
  1  
Reply Fri 12 Dec, 2008 11:17 am
@Roberta,
Checkin' in on ya, B...

hugs.
0 Replies
 
Roberta
 
  2  
Reply Fri 12 Dec, 2008 12:31 pm
Hi gang. Things have been up and down. Eating a little better. Discovered that melon goes down well. Expensive and not primo this time of year, but it's full of liquid and vitamins.

When I talk, something approaching a voice emerges once in a while. It still hurts to talk, but sound coming out is good.

Had some problems; spoke to the docs. (Too disgusting to go into.) They seem to be resolved, kinda sorta.

Trying not to worry about the brain thing. Not entirely succeeding.

Saw the neurologist on Wed. Chaos at Bellevue. Dozens of people had to stand and wait, me included. Started to fade after 40 minutes. A man gave me his seat. Shame on Bellevue.

Finishing up the little job I took. A mistake. Terrible time concentrating. I don't think I did a good job. I haven't accepted any other work. Of course, no workie, no money. Don't know what I'm going to do.

Although there are many foods I miss eating, a few have entered my consciousness and become fantasies.

Broiled Maine lobster drowned in butter. I will be having one of these when I'm ready. I have plans with a cousin.

Corned beef on a roll with a potato knish and Dr. Brown's black cherry soda. I have plans for this as well. Second Avenue Deli.

Pickled tongue with French fries. This will be a challenge. I don't want it from a deli. I will make it. I gotta find a place that carries tongue. Then I gotta have the money to pay for it. Speaking of tongue, mine hangs out and drags on the floor over this one. (BTW, I make very good French fries.)

A grapefruit.

A mixed salad with a tart vinaigrette. I'm not a veggie lover, but I could go for this.

Ham on rye, lettuce and mayo. A slice of sour pickle. Chocolate egg cream. This was my favorite lunch when I was a kid. It still is a favorite. I'll get this eventually.

There are lots of other foods I'd like to have, but they haven't entered the fantasy category.

Foxfyre
 
  1  
Reply Fri 12 Dec, 2008 12:40 pm
@Roberta,
Thanks for small favors. Small progress and relief from depression sufficient to allow positive anticipation are blessings indeed and continued prayers for much more of this yet to come.

I become quite angry when I see young, apparently able-bodied people sitting in the social security office and know that they are able to draw social security disability, but somebody like Roberta is not allowed to do that? Who is your congressperson Roberta? I think it is time to appeal there.
0 Replies
 
ossobuco
 
  1  
Reply Fri 12 Dec, 2008 01:30 pm
@Roberta,
My mother used to make pickled tongue. I liked it, except towards the end and the fatty parts. In campo dei Fiori in Rome there's a whole stand with hanging tongues - (I'll go get one for you...)

Glad, glad, glad about the melon, and glad about sound starting.

Glad about the food fantasies, I think that's an improvement in itself, no?

The standing, oy. I always have had trouble just standing still, even at the height of my youthful health. I know Bellevue is stressed, but they should have someone watching out for patients near fainting, etc. Tough times, and probably getting tougher with layoffs going on.

((Hugs))
0 Replies
 
littlek
 
  2  
Reply Fri 12 Dec, 2008 05:34 pm
@Roberta,
That is a great post to see! Anticipation, length, all of it. Happy to hear some food and voice are going down and coming out.
msolga
 
  1  
Reply Fri 12 Dec, 2008 05:47 pm
@littlek,
Agreeing (absolutely!) with what k said.

Progress, Roberta, progress!!! Wonderful!

I'm smiling here. Very Happy Very Happy Very Happy
0 Replies
 
mac11
 
  1  
Reply Sat 13 Dec, 2008 10:16 pm
@Roberta,
Hooray! I'm glad to hear about the food fantasies. That seems to be a good sign.
0 Replies
 
glitterbag
 
  1  
Reply Sat 13 Dec, 2008 10:55 pm
Hi Roberta, this may have already been mentioned, but if you can get several cans of Ensure, it should help quite a bit....that's as long as you can tolerate the taste. It's not bad, but some folks don't like it. It does have a lot of vitamins and nutrients that your body needs to maintain itself. You can mix it with ice cream or anything that suits you, but I used it back when my mother and then my mother-in-law stopped eating and it really helped restore their energy. Both women suffered from different forms of dementia and their poor appetites rendered them very weak. The Ensure turned that around and made it easier for them to move and to regain normal food tolerance. I don't sell the stuff, but it did work wonders for my Mom and MIL when they needed help. Good luck and best wishes for restored health. GB
0 Replies
 
Izzie
 
  1  
Reply Sun 14 Dec, 2008 05:10 pm
@Roberta,
Healing thoughts goil. xx
0 Replies
 
Butrflynet
 
  1  
Reply Sun 14 Dec, 2008 05:34 pm
Mmmm, good stuff...

http://farm4.static.flickr.com/3229/2615211019_24d8261a82.jpg

Is this the deli, Roberta?


Looks mouth-watering!

0 Replies
 
Roberta
 
  1  
Reply Mon 15 Dec, 2008 11:39 am
My social worker has informed me that there's nothing else she can do for me. I've been dumped.

Feeling bereft and helpless. I know I'm not helpless, but that's how I feel. I have no work and no money. I have no energy. I am not functioning at all well these days.

Did a bit of poking around online. Didn't find much.

Wanting a fairy godmother to swoop in and take care of me. Not gonna happen. I have to pull myself together and figure out what to do. I need another social worker.

********************

Glitterbag, Ensure makes me gag.

Butrflynet, Yup, dat's da place. Yum. Thanks for the links.
Rockhead
 
  1  
Reply Mon 15 Dec, 2008 11:47 am
@Roberta,
Damn, B...

wish I knew someone in the Big Apple.

I'll just hang out and hope with you...

hugs.
0 Replies
 
 

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