141
   

Surgery--Again

 
 
Roberta
 
  1  
Reply Wed 5 Nov, 2008 03:37 pm
@dlowan,
dlowan wrote:

Roberta wrote:

dlowan wrote:

Sucketh mightily.

A goil NEEDS her brain...ALL of it....


At one point they were talking about removing part of my right frontal lobe--seeing and planning. This will not likely happen. My brain is supposed to remain intact. I agree, Deb. I want the whole brain.


Where IS the damn thing, Boida? And how big?

Could it explain some of your other symptoms, like depression and such?


It's pressing on my right frontal lobe. My only symptom was my amnesia episode. Woke up on Saturday and was lost. Called some people who told me to get myself to an ER, which I did. Don't remember what I didn't remember or the conversations. The tumor is sizable. I saw pictures of it. After that episode, I was completely coherent and had not further "episodes." My motor skills are good. I had two MRIs and an EEG (12= hours of that thing). No seizures revealed, but I'm on antiseizure meds anyway. They make me sleepy.
0 Replies
 
Roberta
 
  1  
Reply Wed 5 Nov, 2008 03:39 pm
@Foxfyre,
Foxfyre wrote:

Yes that is definitely a scary one Roberta, and any one of us would take it away if only we could. My husband's oldest nephew--they are only four years apart so they are more like first cousins or brothers--was diagnosed with a brain tumor but it turned out to be treatable. Not the most pleasant thing he ever did, he reports, but it didn't hurt and it was apparently arrested satisfactorily because he is now chasing us into old age. I don't know if you believe in prayer and praying but I do, and I am.


Glad to hear about the nephew, Foxfyre. I don't pray. But I appreciate your prayers on my behalf.
0 Replies
 
littlek
 
  1  
Reply Wed 5 Nov, 2008 08:22 pm
supoib surgeon - excellent! And kind hospital staff - excellent!

I can't wait until this is all a distant memory.
Tai Chi
 
  1  
Reply Thu 6 Nov, 2008 08:01 am
@Roberta,
Roberta wrote:
Everyone asks who my surgeon will be. When I tell them, they get all excited. He's supposed to be supoib. Listed in NY Magazine as one of the best docs in town.


Thank God for some good news. Hang in there, Roberta. (Like you have a choice, I know. Sending a virtual hug and swearing mightily on your behalf!)
0 Replies
 
Roberta
 
  2  
Reply Thu 6 Nov, 2008 05:41 pm
Just back from the neurology clinic at Bellevue.

The attending physician there doesn't understand the rush to surgery. He wants to give me a chance to finish the radiation and recover. He says it's possible I won't need surgery at all. These tumors are flopping around in lots of people's heads. He's not convinced that it caused the amnesia incident on Saturday.

They did schedule a consult with a surgeon. But for an opinion, I assume.

They also discontinued the antiseizure medication since there was no evidence that I had a seizure. I'm relieved. Could not stay awake.

I'm of two minds about this latest development. (Not a symptom.) On the one hand, I don't like having a thing in my head that's not supposed to be there. On the other hand, I'm exhausted and miserable from the radiation and could use some time.

Other problems arose at the hospital which are being addressed (endocrinology). My 'ums are all dangerously low. (Potassium, magnesium, calcium.) This came up during both hospital stays, and huge amounts of the stuff was pumped into me. I told the docs that the same thing happened the last time I had radiation.

I'm having my blood checked on Wednesday, and I have an appointment with endocrinologists in January. By then I assume the problem will be gone.

I need to ponder what the hell is going on. And I'll wait to talk to the surgeon.

Trying to wake up from my last dose of antiseizure stuff.

ossobuco
 
  1  
Reply Thu 6 Nov, 2008 06:40 pm
@Roberta,
I just read up on meningiomas slightly and the first word that zoomed up at me besides benign,(usually), is that they're slow. But that wasn't from any source material, just saying that's better than the opposite.

Glad you're stopping the antiseizure stuff. On the disagreements, that's the beauty and the beast of a teaching hospital - you've got your clinic docs, you've got your attending neurologist, whom I assume is no slouch, you've got your best surgeons ..
and they can argue around the block. I suppose that has its downsides, but I prefer it to some lone guy/woman out there...

Anyway, thinking of ya.
0 Replies
 
dlowan
 
  1  
Reply Fri 7 Nov, 2008 01:00 am
@littlek,
littlek wrote:

supoib surgeon - excellent! And kind hospital staff - excellent!

I can't wait until this is all a distant memory.


Supoib surgeon?


Good


jespah
 
  1  
Reply Fri 7 Nov, 2008 05:30 am
@dlowan,
Supoib soijin.
Smile
Roberta
 
  1  
Reply Fri 7 Nov, 2008 10:23 am
@jespah,
I stand corrected.
Izzie
 
  1  
Reply Fri 7 Nov, 2008 12:57 pm
@Roberta,
Hey goil...

how are you today? been thinking about you a lot actually.

how many zaps left?

have you got any plans for your birthday. i know, it will depend on how you are feeling...

x
Joe Nation
 
  1  
Reply Fri 7 Nov, 2008 01:31 pm
I don't pray either,
but I do
think
some rather
thickishly richly
warm thoughts
which are,
on occasion,
actually visible
as they arrive
through your walls.

Joe(here comes one now)Nation
Roberta
 
  1  
Reply Fri 7 Nov, 2008 02:22 pm
@Izzie,
Izzie wrote:

Hey goil...

how are you today? been thinking about you a lot actually.

how many zaps left?

have you got any plans for your birthday. i know, it will depend on how you are feeling...

x


8 zaps left.

No plans for my birthday. I can't imagine what I could possibly do that would be celebratory. Can't talk. Can't eat. Can't even blow out a steenkin' candle without choking. The celebration will have to wait. But trust me. I will celebrate my birthday--eventually.

Feel lousy. Can't even describe how lousy. Physically lousy. Emotionally lousy. LOUSAY.
Roberta
 
  1  
Reply Fri 7 Nov, 2008 02:23 pm
@Joe Nation,
Joe Nation wrote:

I don't pray either,
but I do
think
some rather
thickishly richly
warm thoughts
which are,
on occasion,
actually visible
as they arrive
through your walls.

Joe(here comes one now)Nation


And I thought my apartment was haunted! Thanks, Joe. Warm thoughts greatly appreciated whether visible or not.
Izzie
 
  1  
Reply Fri 7 Nov, 2008 02:57 pm
@Roberta,
Loisy a? Well. Can understand that Boida... we will celebrate your birthday, in style, when you are ready - no woirries!!!!!! Know it must be so, so hard right now - 8 more zaps.... then moving on to the next strength-sapping step.

Will be a great day when you wake up and feel well once again. We'll be here with you when it happens. Meantime... just wishing... thinking and hoping tomorrow you will feel a little better.

Hugs x

0 Replies
 
dlowan
 
  1  
Reply Fri 7 Nov, 2008 04:09 pm
@Roberta,
Roberta wrote:

I stand corrected.



Don't stand for THAT!!!!

Go after the dawg, Cheetah!!!




Da Boithday?

We'll do that later.


0 Replies
 
Joe Nation
 
  1  
Reply Fri 7 Nov, 2008 06:31 pm
We could do an Unbirthday.
That would be today.
"A very happy unbirthday to you, to me."
"A very happy unbirthday to you, to me."
http://alice.calvin.edu/images/Alice+TeaPartySmall.png
http://www.youtube.com/watch?v=q5FC6E5Gh4E&feature=related

Joe(three sugars, please)Nation
jespah
 
  1  
Reply Fri 7 Nov, 2008 07:13 pm
@Joe Nation,
We'll do your birthday later. That way the anticipation will build more.
Izzie
 
  1  
Reply Fri 7 Nov, 2008 08:35 pm
@jespah,
Nite Boida... hope you manage to rest up some. xx Nite Jes et al x
0 Replies
 
ehBeth
 
  1  
Reply Fri 7 Nov, 2008 09:03 pm
@Roberta,
Eight more zaps. A haunted castle. A birthday. I wish I could make some kind of princess fairytale story out of all of this.

Love you. Sending hugs, and more positive thoughts to hang on the wall.
jespah
 
  3  
Reply Sat 8 Nov, 2008 09:35 am
@ehBeth,
Once upon a time there was a princess who lived in a magical land called Manhattan, although she was originally from a neighboring kingdom called The Bronx.

This princess was well-known in both lands and in many others as a craftswoman. Now, princesses don't usually perform labor, as we all know, but this special princess was a crafter of words, not metal or wood. For many years she performed her duties and was beloved for many things, including her editorial prowess.

One day she met an enchanted group of people called the Abuzzards. They laughed with her and admired her handiwork. When the Abuzzards' land was overrun, they brought her with them to a new land, called Atookaia. There all lived in (mostly) peace and (somewhat) harmony except for every four years or so when the demon election dragon possessed the souls of some of the Atookaians. But otherwise the land was mainly peaceful and the princess continued to ply her trade while exchanging wisdom with the Atookaians.

Then one day two evil dragons decided to attack the princess. They were called Economics and Cancer, and they locked her in a haunted castle full of fear and worry. The Economics dragon tried to drag the princess down and make her life harder. The Cancer dragon tried to kill the princess. The princess enlisted the help of two very important knights. One was called The Supoib Soijin and the other was called The Spirit of Atookaia.

The Supoib Soijin battled the Cancer dragon, and his squires helped against the Economics dragon. The Spirit of Atookaia battled fear and worry. All fought bravely for the princess and unlocked her from the haunted castle.

When the battle was over, the princess went out for kasha varnishkes and a nice bagel with a shmear, and went back to her editorial craft, safe and warm with her Atookaia family, and everyone lived happily ever after.
 

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BOIDA - HAPPY BIRTHDAY! - Discussion by Izzie
Happy Boithday Boida!!!!!!!!!!!!!! - Discussion by dlowan
Happy Boithday Boida!!!!!!!!! - Discussion by dlowan
 
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