Surgery--Again

Looks like I screwed up quoting my other post. You'll find the original here. Click on the triangle in the center of the image of a cassette tape. Once it starts playing you can click on the word MENU under the tape image to see a list of all the songs and pick and choose which ones you want to hear or just let it play through them all.

http://able2know.org/topic/103192-71#post-3458287

If you don't see the image of a cassette tape in that one then there may be a problem on your PC. Are you seeing other images?

Oh Boida. Hugs honey.

Jeeees Boida...

for once... I reckon we're all speechless gal though I reckon we've all uttered some choice words tonite after reading your news.

CRAP..... JUST ...........CRAP!

Secondary, benign...right? Not that that is any consolation right now...

pah feh poo dah kak sod sod sod sod sod sod........sh!te and foooookin how much more a?

Boida... so sorry goil ... but sorry's 'aint much good - you know - even from a distance - we're all here

now, more than ever.... kvetch and scream and shout... please don't stop talking goil... we're here in whatever way we can be for you. Few more zaps right.... then on the 18th.... a new journey....


LOVE YA GOIL.... XOX

Holy crap! Jeez, Roberta, I'm just, well...flummoxed! Really sorry to hear you're dealing with more health issues (really happy to hear it's not malignant). Jeez...

Holy S H I T!

Just how much can a koala bear?

Thoughts from here.

I'm out of my tree on your data, Robbie, I can bare breathe, but never mind me. There is good stuff in there, like the word 'benign'. Work it, and we will too.

damndamndamndamndamndamn

Boida, I am so so sorry to hear this. Please keep us posted when you can.

I'm with Deb. Totally speechless.

Sorry, Berta. I don't know what else to say just now.

We can all say the word "benign" and hold our kiddo in love. This is a triple slap shot. Did we need Robbie to volunteer as some kind of health martyr? No, no, no.

Roberta, we are never away from you, and with luck, at some point you may wish we'd shut up, posters with too much aggravation.
Meantime, we're here.


Jo

I'm reeling, sputtering, and angry. Enough already.

I repeat the word benign, but I've heard it before. It was applied to the malignancy in my throat.

Am I being difficult and cynical? You bet.

Somebody's gonna drill through my skull and fiddle around with the innards of my head. I'm scared shitless. And I'll believe it's benign when the doctor gets it and tests it.

Your support means more than you can ever know.

I love you guys.

Roberta, I'd be scared shitless, too, if it was happening me. Anyone would.
I don't blame you in the least for being "difficult & cynical", as you put it. You want this to stop! Enough is enough! I think you are incredibly strong to have coped as well as you have. I know you haven't had any choice in the matter, but you have been. Sigh.
I just hope that there are friends around to help, listen, comfort .... this would be so hard to cope with in isolation. We can offer words of comfort, love & sympathy here, but really, that's no substitute for being able to ring a friend when the anxiety really gets to you.
Me, I feel really frustrated that I'm only able to send the odd email, the odd post here. I wish so much I could do much more. I just want you to know I'm thinking of you. Often. And that I'm wishing you the strength to cope with this next episode. I wish, I wish it wasn't necessary.

Much love to you. Keep posting & we'll keep listening & responding.

Sucketh mightily.

A goil NEEDS her brain...ALL of it....

Totally.

We love you.

At one point they were talking about removing part of my right frontal lobe--seeing and planning. This will not likely happen. My brain is supposed to remain intact. I agree, Deb. I want the whole brain.

Sorry to read this. I was just thinking that you were getting close to the end f your treatments, now this! **** on a shingle!

Where IS the damn thing, Boida? And how big?

Could it explain some of your other symptoms, like depression and such?

Yes that is definitely a scary one Roberta, and any one of us would take it away if only we could. My husband's oldest nephew--they are only four years apart so they are more like first cousins or brothers--was diagnosed with a brain tumor but it turned out to be treatable. Not the most pleasant thing he ever did, he reports, but it didn't hurt and it was apparently arrested satisfactorily because he is now chasing us into old age. I don't know if you believe in prayer and praying but I do, and I am.

**** on a shingle. I like that, Swimpy.

Just got back from Bellevue where I was supposed to see my ENT for a midradiation checkup. Then I went for radiation.

The doctor I was seeing at Bellevue is gone. The new doctor couldn't figure out why he wanted to see me. You can't tell nuttin' at this stage. Waited three hours for someone to stare at me blankly. They gave me another appointment for two weeks after the radiation (which will now end on Nov 19, not Nov. 18). I told 'em that if I ain't gettin' my head cut open, I'll show up. Ran into the head ENT who was one of my surgeons. Started crying. He got me the name of yet another social worker.

Radiation visit. I'm now on liquid Tylenol. Didn't know there was such a thing. It should help me get my pills down. Haven't lost as much weight as they expected. I attribute that to being in the hospital, where mush is a specific diet. Easier than making mush at home.

I have to call to confirm my appointment with the surgeon. Tomorrow I go to the neurology clinic and for radiation. I'll get more prescriptions at the clinic and more zaps at the radiation. My skin is burning. My gums are bleeding. I can't swallow. According to the radiation doc, all is well. I say feh.

Everyone asks who my surgeon will be. When I tell them, they get all excited. He's supposed to be supoib. Listed in NY Magazine as one of the best docs in town.