@Roberta,
I hope these problems find a speedy workable solution for you...and soon. Social worker pathway sounds like a good one. Many times they can act like a hospital sub-contractor and help you 'vector' some of these problems to better solutions. At least, that's working for me with the VA hospital.
Round #2 of chemo (out patient) for me. Round#2 for me...late morning at 11am...home at 5pm. My sister is great at my side being wing man. The process yesterday went well. however the pre-meds, particularly the Benadryl, caused a huge head rush that lasted about an hour. It fogs your head totally and makes you feel like your on an LSD roller coaster. My sister was entertained while I tried to say anything to her that required concentration. We're a weird bunch and find humor almost anywhere. Glad it didn't last any longer than that.
Oh and Leslie contacted me again by email...to help us find a better 'landing point'. I suggested she call me at some point and I could talk to her. I'm empathetic. i think she must have felt trapped and freaked out.