@ehBeth,
ehBeth wrote:
It was definitely worth logging in to read this!
an eh+
think you're better'n me, eh
bethie, When did you become a duck? I had no idea that your eh and my eh were the same eh. I thought your eh was some Canadian reference. What do I know? I'm from the Bronx. (You mean there's a country north of here? They got a noive.)
Thanks all for the cheers, celebrations, acrobatics, the smooch, and whatever else you offered up by way of celebration/relief.
I thought I'd be feeling energized, which I was when I just got home. Now I'm enervated. Exhausted. Pooped. Also tired. And not from the medication. It's the way you feel when you carry a great weight for a long distance. You're relieved you get to put it down, but you're still tired from the effort.
@Roberta,
Quote:It's the way you feel when you carry a great weight for a long distance. You're relieved you get to put it down, but you're still tired from the effort.
That's the bit when I feel bad....after I have put down the weight.
No wonder you're still tired!!!!
Us? Yay plus!!!
Just got a call from the video lady. The breakfast with legislators is tomorrow morning. How did her call begin? "Hello, superstar!" I had forgotten about the whole megilla.
Not sure I'm gonna go. Think I will. I'll get a copy of the video and get a chance to kvetch to people who might actually be able to do something about what I'm kvetching about.
The lady (Ruth) also asked me to join some kinda hospital committee. I think I'm gonna say yes to that one.
@Roberta,
gogogogogogogogogogogogo...
have a blast.
I'm going! I'm going! Pity the legislator who catches my ear.
It's 8:30 a.m. Had to cancel an appointment with my therapist. But I'm going.
Big issue. What to wear. Working on it.
!Make-UP!
LIGHTS
Camera!!
KVVVVEEETCCHHH!
Joe(think you very mush))Nation
Oh! I can not wait to hear about this breakfast!
Had dinner with that very good kid, Thomas. What a nice boychik. We ate at a little Italian restaurant within walking distance from my apt. He was in town for some kinda running/training thing. He's gonna be in a half-marathon this weekend. The boychik ate like a boid. I, on the other hand, ate like a Boida. Convinced him not to call me sweet--at least not to my face. And why would he?
I tried on a bunch of stuff that might be appropriate for a breakfast with big wigs. All too big. Way too big. One jacket almost fit, but the shoulderpads were from the eighties. Don't wanna show up looking like a linebacker.
Still fussing with hair/scarf/headband issues. Hair too thin for a comb over. (There's a bunch still missing.) Headband drives me nuts (but Thomas said it looked good.) Scarves not long enough, not the right color. And I'm not the greatest tie-er in the woild.
I'll throw on something and show up. If I don't look appropriate, they can think I'm eccentric. (Hey, Thomas. That you can call me to my face.)
8:30 in the morning! Is this a time for breakfast? I'm usually just going to sleep at that hour. Gonna take a nap. Looking forward to seeing the video. And I'll be getting my own copy.
Full report to follow.
@Roberta,
Quote:8:30 in the morning! Is this a time for breakfast? I'm usually just going to sleep at that hour. Gonna take a nap. Looking forward to seeing the video. And I'll be getting my own copy.
Full report to follow.
Really looking forward to that full report, Roberta.
@Roberta,
Hey Soipastar - how'd it go?
(you tired now (((((Boida)))))))?)
x
Hi Gang,
When I got to the breakfast, I'd been awake for 25 hours! The nap didn't work.
When I arrived, I was treated like a VIP. Ruth took me by the hand and introduced me to some important people. Those who had already seen the video recognized me, and referred to me as the Star or the Superstar.
I had been to many corporate breakfasts with bigwigs. Elegant, classy, delish. Hey, Boida. This is Bellevue. Fuggedaboudit. Hospital food served by people from the Community Advisory Board. (I've been asked to join, and I accepted.) I was seated between someone who didn't show up and a lovely woman whose accent was so thick that I couldn't understand what she said. She's the secretary of the board. Eventually, Nancy the head of the Cancer Center sat down next to me. I love Nancy. She's the one who recommended me for the video. And she's been a great help to me. Also a fun, sarcastic, shrewd, and wise Noo Yawker.
There were a few presentations. Information, statistics, etc. All relating to what Bellevue and a few other hospitals in the city do for people like me--the uninsured. I was interested.
Then it was time for the video. It was made up of four patients discussing their experiences with Bellevue. I was last.
I looked terrible. I was in a patient room sitting on an examination chair of some kind. I was leaning forward. My body looked distorted. My head was uncovered. I thought it appropriate to have my tic-tac-toe scalp visible. No regrets there.
BIG PROBLEM! My hearing has been failing lately. I told the ENT about it. He thinks it might be related to the surgery. If it doesn't improve, it will be checked on my next visit.
Why do I mention this? Because of the four patients, I'm the only one I couldn't hear well. Remember, my voice is not exactly stentorian. I was on the goofy/fuzzy-making drug when I made the video. I was neither goofy nor fuzzy in the video. I mention this because I do not remember saying anything I said. They were right. I was animated, articulate, emotional, and, to me, only somewhat audible. At the end I said something that made everybody in the room laugh and applaud. Problem. I didn't hear what I said. I asked the woman behind me what I said. She got distracted and didn't tell me.
No problem, right? I've got the video. It's in the form of a disk. So instead of playing it on the tv, I'll play it on the computer. Not to worry.
By the time the breakfast was over, I'd been up for almost 28 hours.
The pharmacy is on the way out. I figured I'd stop in to get my thyroid prescription. Went in and got a number. There were 40 people ahead of me. I went directly home. I'll start taking the med next week.
Got home, turned on the computer, and found that the disk I was given doesn't fit into the computer--too big. So I ain't gonna get to see me or hear me. Phooey and waaaaaaaaah.
But I can take an educated guess at what I said. I had just given a list of my connections with Bellevue: endometrial cancer, hiatal hernia surgery, throat cancer, brain surgery, and COPD. I think I said. "I"m a professional patient, except nobody pays me." I've said it before. It fits there. Who the hell knows.
By the time I got home, unwound, and got to bed, I'd been awake for close to 30 hours. Woke up at ten. Had breanner (breakfast/dinner).
I'm very glad I went. Glad to be involved in something. Glad to have done it. I wish I could watch the video and hear what I said.
BTW, I thought the other patients were also excellent. They were not as articulate as I was, but what they said was certainly heartfelt and cogent.
C'est tout.
BRAVA!!!!!
We know you were brilliant. We don't even have to see the video.
@Roberta,
Phooey on the disk not fitting!
@Roberta,
Quote:When I arrived, I was treated like a VIP. Ruth took me by the hand and introduced me to some important people. Those who had already seen the video recognized me, and referred to me as the Star or the Superstar.
Now why am I not in the least surprised?
Absolutely delighted the the breakfast launch was such a success, Roberta, but a little concerned about your lack of sleep. Is this usual? Or just a "one off" experience?
Quote:Got home, turned on the computer, and found that the disk I was given doesn't fit into the computer--too big. So I ain't gonna get to see me or hear me. Phooey and waaaaaaaaah.
Oh no! What a shame.
I wonder if it can transcribed (whatever the correct term is) to the correct-sized disk?
Quote:I'm very glad I went. Glad to be involved in something. Glad to have done it.
Good on you, Roberta. Ya done (extra) good!
Sounds like a wonderful experience! I wish I could see the video. I'd have to turn the volume up, too.
