141
   

Surgery--Again

 
 
dlowan
 
  1  
Reply Thu 10 Dec, 2009 07:14 am
@Roberta,
Well, WE like you goddammit!
0 Replies
 
sozobe
 
  1  
Reply Thu 10 Dec, 2009 07:19 am
@Roberta,
Good good. Glad you're coming face to face with people who can help. You're the kind of person people who can help want to help -- plenty of gumption. They know that their help will be put to good use.
0 Replies
 
Roberta
 
  1  
Reply Fri 11 Dec, 2009 02:28 am
I'll be seeing the neurologist at noon. Maybe I'll be able to stop taking the antiseizure meds. Then maybe I'll be able to stay awake.

I'll be seeing the neurosurgeon on Tuesday.
0 Replies
 
Izzie
 
  1  
Reply Fri 11 Dec, 2009 02:43 am
@Roberta,
Roberta wrote:

you mean by talk "out loud."


oh, I just meant do you talk to her about how you're really feeling about things deep down, or do you keep of lot inside, sometimes it's hard to get the words out. No matter girl, no need to reply - sorry to confuse. I'm glad you get she helps you.

Hope all goes well today and soon you will come off the anti-seizure meds. Do you need to come off them slowly? After one of my surgeries I was put on those kind of meds to prevent the nerve spasms in my feet and legs, the names somewhere in a thread (big blue horse pills), but I couldnt just stop them, they were reduced slowly. Maybe worth asking - you probably already asked or I may have missed it.

((((((((((((((((((Boida))))))))))))))))))) always. x
Roberta
 
  1  
Reply Fri 11 Dec, 2009 03:43 am
@Izzie,
Izzie wrote:

Roberta wrote:

you mean by talk "out loud."


oh, I just meant do you talk to her about how you're really feeling about things deep down, or do you keep of lot inside, sometimes it's hard to get the words out. No matter girl, no need to reply - sorry to confuse. I'm glad you get she helps you.

Hope all goes well today and soon you will come off the anti-seizure meds. Do you need to come off them slowly? After one of my surgeries I was put on those kind of meds to prevent the nerve spasms in my feet and legs, the names somewhere in a thread (big blue horse pills), but I couldnt just stop them, they were reduced slowly. Maybe worth asking - you probably already asked or I may have missed it.

((((((((((((((((((Boida))))))))))))))))))) always. x


Izzie, Yes, I talk to her about feelings from way deep down.

Don't know whether I'll be able to stop taking the meds. My dosage has already been reduced, but I'm still fuzzy and goofy. The neurologist is supposed to report on the results of the EEG. I don't know whether she'll tell me to stop taking the meds or whether I have to wait for the neurosurgeon for that.

Gotta get some sleep before it's time to get up.

0 Replies
 
Roberta
 
  3  
Reply Fri 11 Dec, 2009 02:48 pm
If you guys are looking for good news, I strongly enourage you to click on another thread.

Saw the neurologist expecting to get the results of the EEG and find out whether I can stop taking the medication. He started with a bunch of questions, which I answered calmy--until he got to, "Have you had your radiation consult yet?" Radiation? I was under the impression that the tumor was benign!

Apparently there are degrees of benign. This tumor had "atypical formations." Did I know this? No. What does it mean? Not sure. I will see a radiation oncologist next week. I have a feeling that another MRI should have been scheduled after the surgery, but it wasn't. So I may have to see the oncologist twice.

As if this weren't enough to make my day, there are payment complications. Why? Because I applied for Medicaid! I would explain why this complicates matters, but I don't have a clue.

I ran into the head of the cancer center after I got the news. She arranged for me to see my therapist briefly. Not much help. What's she gonna say? She said the only thing she could say--I have every reason to be upset.

I have seen the longlasting effects of radiation on my abdomenal area and my throat. What's gonna happen to my brain? Don't know if I will need it yet, but I'm hard-pressed to be optimistic.

Sigh.

djjd62
 
  1  
Reply Fri 11 Dec, 2009 02:51 pm
poop

((roberta))
0 Replies
 
edgarblythe
 
  1  
Reply Fri 11 Dec, 2009 02:59 pm
Seems it's never-ending. Sorry.
0 Replies
 
mac11
 
  1  
Reply Fri 11 Dec, 2009 03:27 pm
Damn damn damn. I'm so sorry, Boida.
0 Replies
 
Izzie
 
  1  
Reply Fri 11 Dec, 2009 03:35 pm
@Roberta,
so crahp Boida, I'm so sorry.

yes, you have reason to be upset, problem comes with how to move forward a? you will - hill's getting a little steeper, but you will do it.

so sorry, wish so much it wasn't this way for you...


<sigh>


(((((((((((((((Boida))))))))))))))))))))
0 Replies
 
sozobe
 
  1  
Reply Fri 11 Dec, 2009 03:38 pm
@Roberta,
Argh.

Thank you for updating us even when the news is, as djjd so aptly said, poopy.

Not news I wanted to read in the sense of enjoyable, but at the same time it's news I wanted to know so we can be appropriately supportive. Sure hoping that this latest twist resolves as well as it possibly can...
0 Replies
 
CalamityJane
 
  1  
Reply Fri 11 Dec, 2009 03:44 pm
@Roberta,
I am so sorry to hear that, Roberta. It's not something anyone wanted to hear,
especially after the ordeal you went through. I hope things will improve shortly for you. I keep my fingers crossed!
0 Replies
 
dlowan
 
  1  
Reply Fri 11 Dec, 2009 07:13 pm
@Roberta,
So sorry to hear this.
0 Replies
 
ossobuco
 
  1  
Reply Fri 11 Dec, 2009 07:13 pm
@Roberta,
Oh, ****.




Hugs. And a virtual cat purring on your lap.
0 Replies
 
msolga
 
  1  
Reply Fri 11 Dec, 2009 07:14 pm
I'm sorry about this news, Roberta.
0 Replies
 
Roberta
 
  4  
Reply Fri 11 Dec, 2009 10:13 pm
Thanks, all, for the sympathy and good wishes.

In a woid:

ENOUGH!
ossobuco
 
  2  
Reply Fri 11 Dec, 2009 10:27 pm
@Roberta,
ALREADY
0 Replies
 
tsarstepan
 
  1  
Reply Fri 11 Dec, 2009 10:29 pm
@Roberta,
My preferred word is: cheeseburger!
0 Replies
 
ossobuco
 
  1  
Reply Fri 11 Dec, 2009 10:43 pm
@Roberta,
I don't know what to say, Robbie. Well, first, negs re the sloppiness from the docs on telling you, or maybe about followup mri. But most, on the blow re the further question. You are loud and proud and will beat this. Gang up on these people.
0 Replies
 
Eva
 
  2  
Reply Sat 12 Dec, 2009 12:09 am
I'm with CJ. I'm keeping my fingers crossed for you, Roberta.

Do yourself a favor and release some of that anger by yelling at the doctors who were supposed to have told you this after the surgery. I feel sure you can come up with just the right words.
 

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