Bella - do lots of research now.
You need to be ready with lots of questions when you see the doc and the specialist. Have stuff written down - have someone, hubby/friend, with you when you go in - to make sure the questions get asked - and to take notes/be an extra set of ears.
I know I'm a bit nutty about it, but this
http://medlineplus.gov/ is a great resource with lots of links to studies/research/discussions on meds/tx/diagnoses.
Knowing what you can, can really help you feel stronger and more in control of things.