@Roberta,
Hey Goil
The steroids are glucocorticosteroids... they will increase your blood sugars (tho it's a low dose) and your appetite, whilst also reducing the inflammation around your brain and the gamma procedure and can act as oral chemo in some cases. (you know I'm not medical, just my experience rambling here)
I think that possibly whatever your feeling is a mixture of everything that has happened. The fact that you have now had the surgery, done the gamma and all the other stuff - well, there's a release there that could have gone either way - you could have terribly fatigued from it all ... or/and hugely euphoric that there is an end to this particular chapter.
I reckon you too the second option.
There's also the art therapy, the "remembering" who you were and moreso "being who you wish to be", there's the talking with the counsellor, having the ability to work, realising that you are worthwhile and "life" is heading in a new direction and you are healing. You've re-established old and made new connections with friends and even tho you are on your own there, there's a realisation you are not alone...
all of those things are positives compared to what you've had to endure for the last 18 months... where the unknown dominated your life.
so, my suggestion, whatever the feeling that your feeling that is making life good -
go with it goil - try not to think it will stop when the steroids stop - maybe ask the doc if you could even just reduce the amount to even 0.75mg or smaller for a short time. (even more as a placebo affect)
My experience is 2.5mg (prenisolone) up to 30mg day (moon face and massive and I suffered huge depression whilst on them, mainly because of the way I looked I could not go out and was on own in the USA in Ca.) I was on them for 6 years and very slowly weaned off - so, yeah, it's good
not to stay on them - unless it's life threatening. For each operation I undertake I am given 100mg IV during the op - it makes a difference to my recovery.
try not to think of coming off them and it's going to go wrong - just credit yourself hugely for what you've achieved since you were gamma'd - you have moved, shifted, shuffled, tidied, cleaned, cooked, laughed and most importantly BOIDA, you
danced. You've painted, had insight and made friends, spoken out publicy, been on TV, met the Walt and put some memories to bed whilst carting out the old CRT and keyboards. You have achieved MASSIVELY - only you did that - YOU and amazing.
Who the heck else woulda done all the things you did to stand up against the system whilst going thru brain surgery and gamma and fighting for the rights of patients to be asked onto the committee.... only YOU Boida couda done that. Pat you back girl, you deserve it.
Whatever, happens over the next few weeks- you are still that person and may find another balance to keep the good in and when you need to kvetch --- well, we all learn from the Mistress of Kvetching... so feel free.
We love you no matter what!!!!!!!!!! Don't worry - we'll be here - happy, sad, grumpy, shiny.... the things that make up this whole community... of which you are one of our leading ladies and we see you as you don't see yourself.
Hugely proud of you. Hoping you will be encouraged to work with the good feelings.... always know tho... you don't have to be happy all the time...or achieving every day, just be you, the you we care about and love.
Take care, be proud of you.
xxxxxxxxxxxxxxxxx