@Roberta,
Robbie, you may enjoy this, or quiver...
I'm waking up to design issues at a hospital I by and large now love. Well, not quite love.
I've listened to the Dys. I've seen for myself.. not many places for people to rest traipsing up or over to various clinics. I've heard from you and been nonplussed by the lack of help you've had in navigating when you have been near fainting.
I'm odd (we all know that, but in this case have a background both in clinical medicine and design/urban planning) and have noticed a lot of problems, not so much for me, yet anyway, but for some portion of patients.
I talked with my md about about patient access via email and he took me seriously; I have no intention of taking up clinic time, and past that talk, his time. I'm not even antagonistic. But, I'm going to look more closely at current design, and see if I have any thoughts for future hospital planning. I do already, but I may find myself wrong.