35
   

Hospice vs Palliative care

 
 
dyslexia
 
  5  
Reply Tue 24 May, 2011 07:06 pm
@JPB,
It's interesting to me that my pathology has not changed noticeably but, rather, the "officialness" is what's changed, the label "hospice patient" effects not only my attitude about myself but the very system (hospice) that I'm now a member of. It's like I've been notarized "hospice patient" and am now a different person from what I was just a few short weeks ago. I'm treated differently by the entire medical community, the social community, all due to a label. Well, I find it all interesting along with the effects of the medications.
This morning I had some bank business to take care of so I called my bank and asked if I could take care of it on the phone, the person said "No, you will have to come in the bank personally to do that" I responded that I was a hospice patient and it was difficult for me to get to the bank, someone else came on the phone and said " being a hospice patient must make it difficult, we can handle this matter easily on the phone."
hawkeye10
 
  2  
Reply Tue 24 May, 2011 07:11 pm
@dyslexia,
dyslexia wrote:

It's interesting to me that my pathology has not changed noticeably but, rather, the "officialness" is what's changed, the label "hospice patient" effects not only my attitude about myself but the very system (hospice) that I'm now a member of. It's like I've been notarized "hospice patient" and am now a different person from what I was just a few short weeks ago. I'm treated differently by the entire medical community, the social community, all due to a label. Well, I find it all interesting along with the effects of the medications.

If you have not already read Ram Dass Still Here: Embracing Aging, Changing and Dying (2000) you should make it a point to do so....based upon your posts that I have seen I think that you would enjoy this work .
0 Replies
 
JPB
 
  5  
Reply Tue 24 May, 2011 07:15 pm
@dyslexia,
What I find interesting and encouraging is that 1) you've found an appetite, 2) you've figured out that "hospice" isn't an evil entity towards a dead end (no pun intended), 3) you're looking to add some PT that may gain you back some strength that you'd lost, and 4) you're doing some significant introspective looks at a whole bunch of stuff.

It's all good, Bob. Enjoy the ride.
0 Replies
 
Walter Hinteler
 
  6  
Reply Tue 24 May, 2011 07:19 pm
@dyslexia,
In my opinion and what I could observe, you're doing a lot better than in September last year.

And since I could observe this not just over a short time: your cognitive skills are better as well - though worse in some few moments - as they were in September.
And your mobility is a lot better.

The mood swings - well, that certainly might be a response to some drug levels.

Take the "advantage of the disadvantage", there's certainly more which can make life easier.
0 Replies
 
Eva
 
  2  
Reply Tue 24 May, 2011 08:21 pm
@dyslexia,
Hmmm. I would dearly love to be able to conduct my banking by phone. I wonder if that would work for me? Wink
0 Replies
 
Phoenix32890
 
  1  
Reply Wed 25 May, 2011 06:14 am
@JPB,
Agree. I don't think that contemplating one's navel is terribly productive. No one knows what the next moment will bring, so we have to enjoy ourselves to the best of our abilities.


0 Replies
 
dyslexia
 
  2  
Reply Wed 25 May, 2011 06:16 pm
http://mysite.verizon.net/resp4mqi/sitebuildercontent/sitebuilderpictures/penfrthc.jpg
dyslexia
 
  2  
Reply Wed 25 May, 2011 06:19 pm
@dyslexia,
http://farm1.static.flickr.com/150/374780222_ca71b635b3.jpg
dyslexia
 
  3  
Reply Wed 25 May, 2011 06:27 pm
@dyslexia,
http://rlv.zcache.com/i_am_not_a_number_i_am_a_free_man_bumper_sticker-p128089252767257488trl0_400.jpg
0 Replies
 
edgarblythe
 
  4  
Reply Wed 25 May, 2011 06:35 pm
Desk sergeant: You mean to say you got no identification at all?
Jack Burns: That's right.
Desk sergeant: No draft card, no social security, no discharge? No insurance, no driver's license, no nothing?
Jack Burns: No nothing.
Desk sergeant: Look, cowboy, you can't go around with no identication. It's against the law. How are people going to know who you are?
Jack Burns: I don't need a card to figure out who I am. I already know.
ragnel
 
  2  
Reply Wed 25 May, 2011 08:42 pm
@edgarblythe,
Thanks, Edgar.
0 Replies
 
dyslexia
 
  9  
Reply Wed 25 May, 2011 09:12 pm
First Man:
I think, I think I am, therefore I am, I think.
Establishment:
Of course you are my bright little star,
I've miles
And miles
Of files
Pretty files of your forefather's fruit
and now to suit our
great computer,
You're magnetic ink.

First Man:
I'm more than that, I know I am, at least, I think I must be.

Inner Man: There you go man, keep as cool as you can.
Face piles
And piles
Of trials
With smiles.
It riles them to believe
that you perceive
the web they weave
And keep on thinking free.

dlowan
 
  1  
Reply Wed 25 May, 2011 09:50 pm
@dyslexia,
Bureaucracy getting you down.

You seem pretty lively


Yay!
0 Replies
 
Ragman
 
  1  
Reply Wed 25 May, 2011 10:29 pm
@dyslexia,
Moody Blues at the best. I play it fairly often as I have it on vinyl AND CD.
Walter Hinteler
 
  1  
Reply Wed 25 May, 2011 10:48 pm
@Ragman,
Saw them at the Isle of Wight Festival (the UK version of Woodstock) in 1970 ...
0 Replies
 
jespah
 
  3  
Reply Thu 26 May, 2011 02:40 pm
@dyslexia,
dyslexia wrote:

First Man:
I think, I think I am, therefore I am, I think.
Establishment:
Of course you are my bright little star,
I've miles
And miles
Of files
Pretty files of your forefather's fruit
and now to suit our
great computer,
You're magnetic ink.

First Man:
I'm more than that, I know I am, at least, I think I must be.

Inner Man: There you go man, keep as cool as you can.
Face piles
And piles
Of trials
With smiles.
It riles them to believe
that you perceive
the web they weave
And keep on thinking free.




And so, adieu, with the Moody Blues, good night, sweet Prince.
0 Replies
 
JPB
 
  3  
Reply Thu 26 May, 2011 02:46 pm
Rest in Peace, Bob.

You will be missed.
Roberta
 
  1  
Reply Thu 26 May, 2011 02:53 pm
@JPB,
JPB wrote:

Rest in Peace, Bob.

You will be missed.


Revived myself. This is not the post you want to see when you open a thread about hospice and palliative care.

Scrolled up and am feeling better.
msolga
 
  1  
Reply Thu 26 May, 2011 03:07 pm
@Roberta,

Bob Wells died today.:
http://able2know.org/topic/172583-1
Roberta
 
  1  
Reply Thu 26 May, 2011 03:08 pm
@msolga,
I just saw it, Olga. Thanks.
0 Replies
 
 

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