Hospice vs Palliative care

@JPB,

It's interesting to me that my pathology has not changed noticeably but, rather, the "officialness" is what's changed, the label "hospice patient" effects not only my attitude about myself but the very system (hospice) that I'm now a member of. It's like I've been notarized "hospice patient" and am now a different person from what I was just a few short weeks ago. I'm treated differently by the entire medical community, the social community, all due to a label. Well, I find it all interesting along with the effects of the medications.
This morning I had some bank business to take care of so I called my bank and asked if I could take care of it on the phone, the person said "No, you will have to come in the bank personally to do that" I responded that I was a hospice patient and it was difficult for me to get to the bank, someone else came on the phone and said " being a hospice patient must make it difficult, we can handle this matter easily on the phone."

4 Replies

@dyslexia,

dyslexia wrote:

It's interesting to me that my pathology has not changed noticeably but, rather, the "officialness" is what's changed, the label "hospice patient" effects not only my attitude about myself but the very system (hospice) that I'm now a member of. It's like I've been notarized "hospice patient" and am now a different person from what I was just a few short weeks ago. I'm treated differently by the entire medical community, the social community, all due to a label. Well, I find it all interesting along with the effects of the medications.

If you have not already read Ram Dass Still Here: Embracing Aging, Changing and Dying (2000) you should make it a point to do so....based upon your posts that I have seen I think that you would enjoy this work .

0 Replies

@dyslexia,

What I find interesting and encouraging is that 1) you've found an appetite, 2) you've figured out that "hospice" isn't an evil entity towards a dead end (no pun intended), 3) you're looking to add some PT that may gain you back some strength that you'd lost, and 4) you're doing some significant introspective looks at a whole bunch of stuff.

It's all good, Bob. Enjoy the ride.

0 Replies

@dyslexia,

In my opinion and what I could observe, you're doing a lot better than in September last year.

And since I could observe this not just over a short time: your cognitive skills are better as well - though worse in some few moments - as they were in September.
And your mobility is a lot better.

The mood swings - well, that certainly might be a response to some drug levels.

Take the "advantage of the disadvantage", there's certainly more which can make life easier.

0 Replies

@dyslexia,

Hmmm. I would dearly love to be able to conduct my banking by phone. I wonder if that would work for me? Wink

0 Replies

@JPB,

Agree. I don't think that contemplating one's navel is terribly productive. No one knows what the next moment will bring, so we have to enjoy ourselves to the best of our abilities.

0 Replies

http://mysite.verizon.net/resp4mqi/sitebuildercontent/sitebuilderpictures/penfrthc.jpg

1 Reply

@dyslexia,

http://farm1.static.flickr.com/150/374780222_ca71b635b3.jpg

1 Reply

@dyslexia,

http://rlv.zcache.com/i_am_not_a_number_i_am_a_free_man_bumper_sticker-p128089252767257488trl0_400.jpg

0 Replies

Desk sergeant: You mean to say you got no identification at all?
Jack Burns: That's right.
Desk sergeant: No draft card, no social security, no discharge? No insurance, no driver's license, no nothing?
Jack Burns: No nothing.
Desk sergeant: Look, cowboy, you can't go around with no identication. It's against the law. How are people going to know who you are?
Jack Burns: I don't need a card to figure out who I am. I already know.

1 Reply

@edgarblythe,

Thanks, Edgar.

0 Replies

First Man:
I think, I think I am, therefore I am, I think.
Establishment:
Of course you are my bright little star,
I've miles
And miles
Of files
Pretty files of your forefather's fruit
and now to suit our
great computer,
You're magnetic ink.

First Man:
I'm more than that, I know I am, at least, I think I must be.

Inner Man: There you go man, keep as cool as you can.
Face piles
And piles
Of trials
With smiles.
It riles them to believe
that you perceive
the web they weave
And keep on thinking free.

5 Replies

@dyslexia,

Bureaucracy getting you down.

You seem pretty lively

Yay!

0 Replies

@dyslexia,

Moody Blues at the best. I play it fairly often as I have it on vinyl AND CD.

1 Reply

@Ragman,

Saw them at the Isle of Wight Festival (the UK version of Woodstock) in 1970 ...

0 Replies

@dyslexia,

dyslexia wrote:

First Man:
I think, I think I am, therefore I am, I think.
Establishment:
Of course you are my bright little star,
I've miles
And miles
Of files
Pretty files of your forefather's fruit
and now to suit our
great computer,
You're magnetic ink.

First Man:
I'm more than that, I know I am, at least, I think I must be.

Inner Man: There you go man, keep as cool as you can.
Face piles
And piles
Of trials
With smiles.
It riles them to believe
that you perceive
the web they weave
And keep on thinking free.

And so, adieu, with the Moody Blues, good night, sweet Prince.

0 Replies

Rest in Peace, Bob.

You will be missed.

1 Reply

@JPB,

JPB wrote:

Rest in Peace, Bob.

You will be missed.

Revived myself. This is not the post you want to see when you open a thread about hospice and palliative care.

Scrolled up and am feeling better.

Hospice vs Palliative care

Related Topics

Quick Links

My Account

able2know