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Amish and autism, good read..

 
 
Chai
 
  1  
Reply Mon 21 Apr, 2008 02:33 pm
High Seas wrote:
Retardation, yes, it's been around forever, but "autism", ....... and the like are inventions by pseudo-medics. Some of them really believe what they say, the others are in it for the money.




I'm simply going by what you said here high sea's...that autism is an invention of pseudo-medics (whatever that is)

I'm not talking about diagnosing online. I'm asking you to explain what you said.

If, as quoted above, you say autism is an invention, then what would you call someone who has the symptoms of, let's make this easy, moderate to severe autism?

Would you say they are mentally retarded? Again, I would say this is obviously not true. Someone could have a genius IQ and exibit autism.

I'm just wondering how you came to the conclusion autism was "invented"

I'm not debating whether or not there are any new diseases, or just the ones that have always been there.
In times past mentally retarded people were locked up in asylums with the insane, and the criminally insane.

Those with autism were assumed to be mentally retarded, along with let's say deaf people, mutes, and other physical impairments. Helen Keller, if she hadn't had the interested family she had, would have been deemed retarded and locked away.

Let's say there are no new diseases. We have fortunately, because better at seeing something that was always there, i.e. autism, instead of lumping it all under the heading of mentally retarded.

The earth has always revolved around the sun, we just didn't recognize that for awhile. A new way of orbiting was not "invented" by a mathematician, it was just finally understood and separated from other ideas of the day.

Again, why do you say autism is an invention.
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boomerang
 
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Reply Mon 21 Apr, 2008 02:38 pm
Bookmarking too.... interesting stuff here.....
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High Seas
 
  1  
Reply Mon 21 Apr, 2008 02:40 pm
Chai - I already answered you. You seem to conflate "diagnosis" and "symptoms".

Centuries ago people suffering seizures were "diagnosed" as sorcerers and burned alive. Now the "same symptoms" will probably lead to another "diagnosis" such as, for instance, epilepsy.

Please think this through - doesn't mean the sick people are "faking" their symptoms, or they're not suffering; it does mean that making up some artificial diagnosis such as "sorcery" isn't likely to lead to any beneficial treatment for the patient.

Hope that was clear.
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Izzie
 
  1  
Reply Mon 21 Apr, 2008 03:17 pm
High Seas wrote:
ThroughTheLookingGlass wrote:
If you look at the autism statistic by themselves, it appears that there is more autism now. However, if you look at autism stats in conjunction with other developmental disorders, particularly retardation, you will see cases of retardation decreasing in about the same numbers. It appears to be a diagnostic shift rather than the appearance of new cases. ..........


Actuarially speaking there are no "new" diseases. Nobody in risk management believes in the existence of any of those "suddenly discovered" psychobabble "illnesses".

Retardation, yes, it's been around forever, but "autism", "ADD", "ADHD" and the like are inventions by pseudo-medics. Some of them really believe what they say, the others are in it for the money.

Worse than the medics, even, are the "minders", including teachers, who would rather apply the time-tested Soviet gulag forcible administration of psycho-drugs than put up with difficult children.

All those Soviet psychiatric asylum inmates got miraculously "cured" after the communist collapse - obviously a triumph of Russian medicine!

Diagnostic monstrosities by pseudo-medics, in both cases.

The drugmakers are raking it in with the "new" drugs to "treat" all those "new" diseases, so they're not complaining. Insurance companies have plenty of mathematically trained actuaries, all of whom know what I just posted, but they're under pressure by politically correct regulators who can cause vast damage to the insurers' reserves and credit rating.

I guess the Amish don't go much for "health insurance", specially when it comes to "mental health parity" - that would explain their statistics <G>


High Seas wrote:
Chai - I'm a mathematician, not a medic. Even if I were a medical doctor I wouldn't presume to diagnose online.

If you read the Amish article at the start of this thread you'll see the "autistic" child was adopted in China.

The Chinese know very well factors contributing to mental retardation (for instance, illnesses afflicting the mother during pregnancy) and have long been suspected of dispatching those newborns to eager adoptive parents overseas - without, of course, any background information on the baby.

Whether this is the case here, of course, cannot be ascertained without actual checking of all pertinent facts - not likely to occur any time soon.


MINDERS - TEACHERS - I take it that means PARENTS as well.

Not all children who have autism are on drugs.

Actuarially speaking there are no "new" diseases. Nobody in risk management believes in the existence of any of those "suddenly discovered" psychobabble "illnesses".

Actuarially speaking...
as a mathematician....

Smile <--------see that smile

Best I keep my mouth shut right now, you know, being the parent of a child with a psychobabble illness (ooops - wrong word there - illness means take a pill and hope for a cure......... a brain that is "wired" in a different way CANNOT be cured - a pill cannot cure autism! Mental disease is different to mental disorder!)


Smile there we go...


and breathe
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JPB
 
  1  
Reply Mon 21 Apr, 2008 03:51 pm
High Seas wrote:
ThroughTheLookingGlass wrote:
If you look at the autism statistic by themselves, it appears that there is more autism now. However, if you look at autism stats in conjunction with other developmental disorders, particularly retardation, you will see cases of retardation decreasing in about the same numbers. It appears to be a diagnostic shift rather than the appearance of new cases. ..........


Actuarially speaking there are no "new" diseases. Nobody in risk management believes in the existence of any of those "suddenly discovered" psychobabble "illnesses".


The hyperbole of that statement is striking. Are you saying that standard actuarial practice is to treat any "new" disease as a subset of an existing diagnosis category when assessing risk?
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Chai
 
  1  
Reply Mon 21 Apr, 2008 04:20 pm
High Seas wrote:
Chai - I already answered you. You seem to conflate "diagnosis" and "symptoms".

Centuries ago people suffering seizures were "diagnosed" as sorcerers and burned alive. Now the "same symptoms" will probably lead to another "diagnosis" such as, for instance, epilepsy.

Please think this through - doesn't mean the sick people are "faking" their symptoms, or they're not suffering; it does mean that making up some artificial diagnosis such as "sorcery" isn't likely to lead to any beneficial treatment for the patient.

Hope that was clear.


Absolutely not.


I used the word symptom rather than diagnois, since you are the one saying the diagnosis is being invented. I understand the difference, I was trying to use your language.

I'm asking you if the the diagnos (better?) of autism was invented, and that it's really another diagnosis that has been around a long time, than what is it?

If varying degress of what is called autism is several things, what several things are they?

In some circles, flatulence used to be called "the vapors", either way, it stank.
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Chai
 
  1  
Reply Mon 21 Apr, 2008 04:23 pm
JPB said it better in just 2 lines.
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boomerang
 
  1  
Reply Mon 21 Apr, 2008 05:49 pm
I don't know from statistics and such but I can attest to the dangers of diagnosis.

Mo was diagnosed as having asthma. I went to have his prescription refilled recently after a YEAR. He has asthma if we don't control his allergies.

Nevertheless we went through absolute hell when we changed insurance companies. They didn't want to cover him because he has asthma. We got around this problem ONLY because he's adopted and there are laws saying you can't exclude adopted kids.

I am wary of diagnosis. I think sometimes doctors are diagnosis happy. This **** follows you around.

I think a lot of these problems are real -- ADD, ADHD, Asperger's, etc., but god help you if you are diagnosed with them.
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Chai
 
  1  
Reply Mon 21 Apr, 2008 06:15 pm
High Seas wrote:
Centuries ago people suffering seizures were "diagnosed" as sorcerers and burned alive. Now the "same symptoms" will probably lead to another "diagnosis" such as, for instance, epilepsy.



I had to reread this more carefully.

Aren't you just reaffirming what I'm saying?

If someone is having seizures, are you saying we should have stuck with the old tried and true diagnosis of sorcery? Why come up with a psycho-babble diagnosis when we know it's witchcraft?

Thus, a new diagnosis was discovered, and one that's a darn sight better than working with the devil.

Having seizure can be caused by many illness, epilepsy included.

Certain symptoms can be caused by multiple things, one of which is autism.
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Izzie
 
  1  
Reply Tue 22 Apr, 2008 06:32 am
boomerang wrote:

I think a lot of these problems are real -- ADD, ADHD, Asperger's, etc., but god help you if you are diagnosed with them.



Hey Boomer

Have been reading your thread hun so know where you are coming from.

Unfortunately, in some cases - not having a dx as a "signpost", not a label, could mean far more dire consequences.

Having a dx - even if it is considered psychobabble illness by "minders" for having a difficult child - sometimes, not always, it can save a child's life in certain circumstances.

Diagnosis can often be handed out to suit the purposes of some people, whether that is parental, minders, teachers, medical doctors, psychs or even mathematicians - I would not disagree that this can happen.

As is implied by certain postings - this is to suit the "drug companies" - money fiends - whoever. I live where there is a National Health System that tries NOT to pay out for diagnosis or "signposts". It works the opposite way here - which kinda blows the above theory right out of the sea.

If a "signpost" is warranted - and a child can receive help because they are autistic - not naughty or difficult - "autistic" - then I am for diagnosis in that respect. And yeah - it does follow you round, and the child, and everything they do and say and eat and how it happened and who was to blame (parental illness for example!) - however, I would still wish for dx - even when that means "family" and "child" suffer with the knowlege of an autistic label and the impact that can have.

I hope you understand what I am saying there. Don't wanna fight with anyone - especially someone who has personal experience.

Anyone else though who thinks they can talk about "autism" and it all being a bunch of hodgepodge..... well -----------------> Smile


Chai wrote:
High Seas wrote:
Centuries ago people suffering seizures were "diagnosed" as sorcerers and burned alive. Now the "same symptoms" will probably lead to another "diagnosis" such as, for instance, epilepsy.


I had to reread this more carefully.

Aren't you just reaffirming what I'm saying?

If someone is having seizures, are you saying we should have stuck with the old tried and true diagnosis of sorcery? Why come up with a psycho-babble diagnosis when we know it's witchcraft?

Thus, a new diagnosis was discovered, and one that's a darn sight better than working with the devil.

Having seizure can be caused by many illness, epilepsy included.

Certain symptoms can be caused by multiple things, one of which is autism.


Hey Chai - yep - that's exactly how I read it too Exclamation
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boomerang
 
  1  
Reply Tue 22 Apr, 2008 10:22 am
I guess I fall somewhere in the middle of all this. I do think some of it is psychobabble - what used to be accepted as quirky is now Asperger's. That kind of bothers me. I like quirky.

Autism though is obviously a serious problem.

Seizures are obviously a serious problem not related to sorcery.

There is a whole alphabet of behavior disorders that doctors attempt to treat but they don't really understand -- Aspergers, ADHD, etc. I won't try to outhink High Seas or put words in her mouth but I think that's what she was getting at with her sorcery analogy.

We pay for my son's therapist out of pocket instead of turning in to our insurance company. If we have him evaluated for ADHD we'll probably do the same. Some day he'll be all grown up and have to pay for his own insurance and we don't want this stuff to haunt (and bankrupt) him.
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Chai
 
  1  
Reply Tue 22 Apr, 2008 10:26 am
I do agree boom, in the areas you are talking about.

Honestly? I think there a lot diagnosis out there that are pychobabble. As far a behavior stuff, I'm not so some kids just need to be told to sit down and be quiet.

However, when you delve into the realm of autism, that is not invented.
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boomerang
 
  1  
Reply Tue 22 Apr, 2008 10:47 am
Oh I completely agree it is not invented.

Right after Mo's other parents split up Mo came to stay with us -- except for the brief time his dad whisked him away. Other dad had him for about five days then the called Mr. B to come get Mo. Mo had sat in his car seat, inside the front door, for two days -- not saying a word, not eating, barely sleeping, just rocking.

When he came back to our house he would leave the car seat but he wouldn't make a sound. Not a sound. No eye contact. No nothing. For several days. He had just turned two. We knew it wasn't autism but it was absolutely terrifying.

I can't even imagine what life would be like with a child who can't/won't communicate.
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OGIONIK
 
  1  
Reply Tue 22 Apr, 2008 02:19 pm
boomerang wrote:
I guess I fall somewhere in the middle of all this. I do think some of it is psychobabble - what used to be accepted as quirky is now Asperger's. That kind of bothers me. I like quirky.

Autism though is obviously a serious problem.

Seizures are obviously a serious problem not related to sorcery.

There is a whole alphabet of behavior disorders that doctors attempt to treat but they don't really understand -- Aspergers, ADHD, etc. I won't try to outhink High Seas or put words in her mouth but I think that's what she was getting at with her sorcery analogy.

We pay for my son's therapist out of pocket instead of turning in to our insurance company. If we have him evaluated for ADHD we'll probably do the same. Some day he'll be all grown up and have to pay for his own insurance and we don't want this stuff to haunt (and bankrupt) him.


your telling me, my mom advised me to talk to a counsellor, and then depression symptooms end up becoming aspergers and body dysmorphia? or someshit, hyperlexia, all these diagnoses
and all i have is PTSD.

wtf is wrong with everyone today? all these scams and rip offs instead of real, dedicated, hardworking institutions. i swear to god when he started naming illnesses i was like damn i knew i was fucked up, then i was like, no iim not... i mean i just need to relax for a few months. and what do you know?

I take the poor mans vacation (unemployment) and im perfectly fine.
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High Seas
 
  1  
Reply Thu 24 Apr, 2008 02:23 pm
JPB wrote:
........ Are you saying that standard actuarial practice is to treat any "new" disease as a subset of an existing diagnosis category when assessing risk?


Certainly not.

E.g.: SARS, AIDS, MRSA are perfectly valid "new" diagnoses, but morbidity / mortality rates associated with one of these "new" diagnoses aren't due to any "new diseases", just with some variant of some virus, bacterium, mold, that's been around forever.
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High Seas
 
  1  
Reply Thu 24 Apr, 2008 02:41 pm
ThroughTheLookingGlass wrote:
If you look at the autism statistic by themselves, it appears that there is more autism now. However, if you look at autism stats in conjunction with other developmental disorders, particularly retardation, you will see cases of retardation decreasing in about the same numbers. ............It is probably a good idea to be suspect of any diagnosis based solely on behavior with no genetic or chemical backup, particularly when these labels can have adverse effects on the rest of the child's life.


Thanks, TTLG. I hope Chai will find your explanation clearer than mine.

Btw, and in reply also to Izzie, the above observations are valid not only in the Americas, but also in Europe (incl. Russia) and points East. Nor do they vary much as a function of public or private health care funding.

Here is an article on publicly funded pediatric diagnoses in one US State:

Quote:
......New use of antipsychotics for schizophrenia, acute psychotic reaction, Tourette syndrome, and mental retardation or autism remained relatively constant. Secular trends of increasing use were most pronounced for those aged 6 to 12 years (93% increase) and 13 to 18 years (116% increase), although use among preschool children increased 61% during the study period.......
http://archpedi.ama-assn.org/cgi/content/full/158/8/753


The NHS and the top private Harley Street specialists both supply reasonably comparable data to the UK Statistics Authority >
http://www.statistics.gov.uk/
> so "payer" can't be the most significant factor.
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Chai
 
  1  
Reply Thu 24 Apr, 2008 02:42 pm
High Seas wrote:
Actuarially speaking there are no "new" diseases. Nobody in risk management believes in the existence of any of those "suddenly discovered" psychobabble "illnesses".




So you are saying now there ARE new diseases, but people don't DIE of these new diseases, they die of the same old stuff as before....like having a socerer cast a spell on you?

You speak with forked tongue.
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High Seas
 
  1  
Reply Thu 24 Apr, 2008 02:47 pm
Chai wrote:
High Seas wrote:
Actuarially speaking there are no "new" diseases. Nobody in risk management believes in the existence of any of those "suddenly discovered" psychobabble "illnesses".




So you are saying now there ARE new diseases, but people don't DIE of these new diseases, they die of the same old stuff as before....like having a socerer cast a spell on you?

You speak with forked tongue.


Chai - please READ and THINK before TYPING.

Your posts have the lowest signal-to-noise ratio of anybody on this thread.
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High Seas
 
  1  
Reply Thu 24 Apr, 2008 02:53 pm
boomerang wrote:
..........
There is a whole alphabet of behavior disorders that doctors attempt to treat but they don't really understand -- Aspergers, ADHD, etc. I won't try to outhink High Seas or put words in her mouth but I think that's what she was getting at with her sorcery analogy.
................


Well of course, Boomerang!

It's hard to believe that anyone of reasonable literacy / intelligence would read my post as advocating a return to burning those afflicted by seizures as witches. In fact, I don't believe such a thing took place on this thread Smile
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Setanta
 
  1  
Reply Thu 24 Apr, 2008 02:54 pm
Goddamnit . . . let's burn somebody ! ! !
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