141
   

Surgery--Again

 
 
Roberta
 
  5  
Reply Sun 16 Sep, 2018 11:24 pm
A few more tidbits.

I lost 25 pounds. I went to the hospital with safety pins holding up my pants.

I was in complete isolation for each of my hospital stays. C-diff is contagious. Not airborne. It's by touch. This is why I have two new pens. In each case a doctor handed me a pen for something. I tried to return each one, but both declined because I (typhoid Mary) had touched it.
Ragman
 
  3  
Reply Mon 17 Sep, 2018 02:44 am
@Roberta,
Glad to see your message and that you’re on the mend and heading in a good direction. Amazing doctors and that pharma company responded appropriately and approved making the Med available to you. So glad they intervened.
0 Replies
 
dlowan
 
  2  
Reply Mon 17 Sep, 2018 06:07 am
@Roberta,
Pens are good.

How is the fight against the bug going at this point?

Roberta
 
  5  
Reply Mon 17 Sep, 2018 11:55 pm
@dlowan,
I picked up the pricey med today. I'll start taking it tomorrow.

I'm feeling better than I expected to feel.

With a price tag of about $2,400, this new med had better work.
dlowan
 
  1  
Reply Tue 18 Sep, 2018 12:17 am
@Roberta,
Did you have it while in hospital?

It should come in a gold packet for that price!
Roberta
 
  4  
Reply Tue 18 Sep, 2018 12:29 pm
@dlowan,
No, I didn't have it in the hospital. I have it now. Took a pill a few minutes ago.
0 Replies
 
JPB
 
  3  
Reply Thu 20 Sep, 2018 05:05 am
Is the $$$$ med more antibiotics, or are they dealing with post-infection complications? Nasty bug!! It's prevalent in nursing homes. We think my daughter, M, was exposed to it after Mr B's grandmother came for a visit and shared M's bathroom. She'd been in a nursing home previously. Healthy people can carry it for years. M was prescribed Cipro for another issue and the Cipro killed off everything except the C Diff. Then she was dealing with the C Diff for weeks. She still has gut issues from it. Wishing you a complete recovery with no long-lasting issues.
Roberta
 
  4  
Reply Thu 20 Sep, 2018 04:33 pm
@JPB,
Hey J, The expensive med is another antibiotic. I can't have post infection complications until I am post infection. Not there yet.
dlowan
 
  1  
Reply Thu 20 Sep, 2018 06:19 pm
@Roberta,
How are you feeling on the expensive medication?
Roberta
 
  2  
Reply Thu 20 Sep, 2018 11:22 pm
@dlowan,
The same as I felt on the cheaper medication. I don't think I'll know whether it was a success or not until I finish it.
0 Replies
 
edgarblythe
 
  2  
Reply Wed 26 Sep, 2018 06:15 am
Enquiring minds, hovering anxiously -
dlowan
 
  2  
Reply Wed 26 Sep, 2018 01:33 pm
@edgarblythe,
Yes! How are you feeling Boida?

0 Replies
 
Roberta
 
  8  
Reply Wed 26 Sep, 2018 05:21 pm
Same as above. I finish the expensive med tomorrow and see a doctor on Friday.

I'll keep you posted.
Sturgis
 
  2  
Reply Wed 26 Sep, 2018 10:42 pm
@Roberta,
I'll be waiting for the results report. Staying to the optimistic side.
0 Replies
 
JPB
 
  1  
Reply Thu 27 Sep, 2018 08:48 pm
@Roberta,
Listening...
0 Replies
 
ehBeth
 
  1  
Reply Thu 27 Sep, 2018 09:27 pm
we'll be here
0 Replies
 
jespah
 
  1  
Reply Fri 28 Sep, 2018 05:10 am
Waiting
0 Replies
 
Lash
 
  1  
Reply Fri 28 Sep, 2018 03:26 pm
Looking in.
0 Replies
 
Roberta
 
  5  
Reply Fri 28 Sep, 2018 03:45 pm
Back from Bellevue. As I anticipated, it's now a wait and see situation. I asked about a refill for the expensive med. Nope.

I've been feeling "normal" the past couple of days. The first time since June.

I'm not good at waiting, but I'll wait--and see.
dlowan
 
  2  
Reply Fri 28 Sep, 2018 04:03 pm
@Roberta,
I’ll be crossing every damn thing I have that you stay feeling normal.

I assume you have a follow up appointment made?

Can you get out to your book group and stuff like that?
 

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