Serious Health Issues discussed for comment

Received this message on Facebook from a former colleague :

I can empathize with the author of this post. While I only have 2 of the issues on the list below, my chronic pain covers about 10 joints or other areas, and I have at least 10 other things that require both many prescription and OTC meds or doctor requested supplements. The author's statements are in parens below. This is a long post but important for many reasons. Please think about them if you see someone that cannot do something.
"To be clear, I’m personally not ill, but I want to remind people that many people are. Please be kind, we never know what others are dealing with.
Note: Long emotional post. 😢
Public Service Announcement……if you get into a committed relationship with someone that has chronic health issues please please please understand that the person may not be able to do anything for themselves for weeks to months at a time and a large burden is going to fall on you. Take the time to make sure you're able to handle it before you commit.
I didnt ask for my body to fail.
My favorite quote from my doctor was, “it can’t really be that bad if you are still working and doing everything you do. “ I told him I didn’t know I had a choice. 🤷🏾‍♀️
Years in pain, tired and the many changes in me for no reason or apparent reason ... Hiding everything from someone else, pretending to be doing better than you are; until it no longer works. No matter how strong you want to be.
Then the moment comes when they tell you what you have ... You have mixed feelings: you finally know what you have, but how do you deal with it?
Lack of encouragement, wanting to lie down, taking medication frequently; having a whole pharmacy on top of the nightstand.
Then, the daily responses, "Why did you get so fat?" “I have this great diet, if you just go out and exercise.
That once beautiful hair of yours now awful and it falls out.
What happened to you??....
This is all true and that's why I'm sharing it!
Silent and invisible diseases do exist ...
When you have an invisible disease it is difficult to argue from your perspective with ignorant people.
Life takes a lot of turns !!!
Tired of being told:
* Did you go to the doctor?
* Have you tried this?
* Have you tried that?
* I don’t know what else we can do for you...
Yes! I tried and still try everything !!!
Doctors say this disease is forever. That I will not heal. However, I am not giving up, but I want to make others realize:
* A nap will not cure me but it will help me ...
* I am not lazy, I take medication and it sometimes makes me sleepy.
* I am not angry but sometimes cranky with pain.
* I struggle daily with pain, mobility problems, fatigue, the criticism of my environment.
Most frustratingly, people look at me and say, "It can't be that bad; you look good "
Despite the fact that my body is experiencing excruciating pain everywhere, of course I look good, I always try to look good, it is an "invisible" disease.
This disease affects me physically, mentally and emotionally. Because rare autoimmune diseases cannot be seen, but we feel them.
And they are there ... Silent attack but extra painful.
I AM LOOKING AT THOSE WHO TAKE TIME TO READ THIS POST TO THE END.
The following request is sent to the post:
Please, for me and in honor of someone who fights against:
-Sicklecell Disease SS & SC etc..
-Ankylosing Spondylitis
-ALS
-Lupus
-MS
-POTS
-Dysautonomia
-Crohn’s Disease
- Ménière’s Disease
- Cushings Disease
-Addisons Disease
- Lipedema
-Hashimotos Disease
-Graves Disease
-FND
-Depression
-Anxiety
-Autoimmune disease
-Sjogrens syndrome
-Polycystic ovary syndrome.
-Kidney Desease
-Rheumatoid arthritis.
-Chronic pain
-Endometriosis.
-IIH
-migraines
-Multiple sclerosis.
-Myasthenia gravis.
-Pulmonary hypertension.
-Epstein Barr syndrome.
-Chronic fatigue syndrome.
-Diabetes
-Fibromyalgia.
-Raynaud and Scleroderma.
-Neuralgia of the trigeminal
-Epilepsy
-Cancer
-Hypothyroidism
-Arachnoiditis
-NEAD
-Vasculitis
-Neuropathy
-Ehlers-Danlos syndrome
Lymphedema
- Psoriasis
-Alpha 1 antitrypsin deficiency
-BPD
-Traumatic brain injury
-MOGAD
or some other disease you can’t see
I would like 2 of my friends to post (not share) this message to show that you are always there when that someone needs to talk.
In support of a friend, a family member who is fighting any of these diseases. Just say
" Done " 💜
Thank you ❤️ we must understand what true commitment and love really means. We are not meant to be alone."



I'm posting this as a reminder of the issues so many of us face. I'm taking a new blood pressure medication that makes me sleepy all day. Arguments with my doctor are fruitless because this is the "absolute best medicine in the world" for me right now. My husband and I (like many of us) also deal with several issues on the list, as we get older we usually rack up something else. I decided to post this simply because so many of the 'helpful comments' are well intentioned but sometimes painful to hear. We need to stay alert to the disorders and try not to minimize them.