38
   

Bumblebeeboogie (BBB)

 
 
Butrflynet
 
  6  
Reply Thu 26 May, 2016 09:52 pm
Mom is doing much better, the liquid antibiotics have had a positive result. However, this last episode with mom has taken a big chunk from her already limited ability to communicate and to function. She has forgotten how to use many every day things like the TV remote, turning on and off lamps with a remote (I got timers to solve that problem but she doesn't trust they will work and becomes upset and paranoid until they come on an hour earlier than sunset), has trouble dressing herself now, and I've had to hide things she can misuse or hurt herself with. She needs help getting up from chairs much of the time unless I have a 3 inch booster cushion on them.

She has very limited vocabulary and has lost most of her nouns. It is a constant guessing game trying to figure out what she is saying. She is always angry because I am no longer able to correctly guess at what she is saying much of the time..

Her mood swings change from hour to hour. She can go from being the sweetest tender and loving mother to a screaming paranoid stranger and back to a clinging helpless infant in the space of an hour. She wants me with her all the time, but spends most of our time together either sleeping or screaming at me for not understanding what she is saying. Sometimes I just nod my head and smile as if I have a clue of what she said, but many times she is trying to tell me something she wants done and the nodding doesn't work.

I am making use of the hospice volunteers to get myself out of the house for longer stretches of time and a lot more often. It does us both some good. She seems to perk up and have moments of clarity when there are visitors here.
Roberta
 
  5  
Reply Thu 26 May, 2016 11:38 pm
You have my sympathies. My mother had alzheimer's. Toward the end, I didn't know who she was, she didn't know who I was. Sad and difficult to deal with. I'm glad you're able to get out and away for a while.
0 Replies
 
edgarblythe
 
  2  
Reply Thu 26 May, 2016 11:48 pm
My best wishes or the both of you.
0 Replies
 
Linkat
 
  2  
Reply Fri 27 May, 2016 05:51 am
@Butrflynet,
I am so sorry. I wish I could give you advice, but I am thinking of you too.

I am glad that you have hospice. They are great. I know they were huge for my mom when my dad was so sick.
0 Replies
 
jespah
 
  2  
Reply Fri 27 May, 2016 07:11 am
Thank God and Gene Roddenberry and the Flying Spaghetti Monster for hospice. Hugs to you, BFN.
0 Replies
 
ehBeth
 
  2  
Reply Fri 27 May, 2016 07:51 am
@Butrflynet,
So glad to hear that you're taking care of yourself as well as Bumblebeeboogie.

Hospice staff and volunteers are just the best.
0 Replies
 
Miller
 
  2  
Reply Wed 13 Jul, 2016 02:39 pm
Best wishes!
0 Replies
 
edgarblythe
 
  7  
Reply Wed 13 Jul, 2016 03:03 pm
Today is BBB's birthday.
HAPPY BIRTHDAY.
Miller
 
  1  
Reply Fri 15 Jul, 2016 06:26 am
@edgarblythe,
Happy Birthday
0 Replies
 
bobsal u1553115
 
  1  
Reply Mon 18 Jul, 2016 09:06 am
Belated Happy Birthday!
0 Replies
 
Butrflynet
 
  2  
Reply Mon 12 Sep, 2016 09:38 am
It is with deep sorrow that I let our friends near and far know that mom passed away peacefully last night.

I don't yet have any details to share. Her request was that she be cremated and that there be no funeral services.

I'm going to take a day or two to absorb my new reality without my best friend. Feeling a little numb, lost and overwhelmed right now and am struggling to find sufficient words. Just need to try to sleep.
ossobucotemp
 
  1  
Reply Mon 12 Sep, 2016 09:43 am
@Butrflynet,
Thank you for telling us.
May she rest in peace.

Jo
0 Replies
 
edgarblythe
 
  1  
Reply Mon 12 Sep, 2016 09:43 am
It makes me sad that she is gone, but she is at rest now. Thank you for letting us know.
0 Replies
 
ehBeth
 
  2  
Reply Mon 12 Sep, 2016 09:45 am
@Butrflynet,
http://www.livehonestly.com/uploads/1/0/5/2/1052094/4916229.jpg?609

RIP dear friend

I have missed your joyousness and many enthusiasms


http://www.butterflypictures.net/images/butterfly17.jpg

Take care of yourself.
0 Replies
 
CalamityJane
 
  1  
Reply Mon 12 Sep, 2016 09:47 am
@Butrflynet,
I am so sorry for your loss, Butrflynet.
Mothers are always special and very dear to our heart and her love will always be with you and this you'll never lose. BBB was a big part of a2k and I remember her feisty replies and her avid contributions to current events.
She'll be missed by all of us.
My deepest sympathies!
jespah
 
  1  
Reply Mon 12 Sep, 2016 09:50 am
I am so sorry to read this. Be good to yourself.
Walter Hinteler
 
  1  
Reply Mon 12 Sep, 2016 09:52 am
@CalamityJane,
My deepest sympathies!
May she rest in peace.
0 Replies
 
chai2
 
  1  
Reply Mon 12 Sep, 2016 10:27 am
@jespah,
jespah wrote:

I am so sorry to read this. Be good to yourself.


Agreeing.

Take lots of time to find your new normal.

RIP BBB
0 Replies
 
farmerman
 
  1  
Reply Mon 12 Sep, 2016 10:27 am
@Butrflynet,
We'll keep the memories of her alive. She certainly was loved here.

0 Replies
 
fbaezer
 
  1  
Reply Mon 12 Sep, 2016 10:45 am
@Butrflynet,
Sad news.
She was a great woman.
It was a privilege for me to have known her.
A big hug for you, Butrflynet.
0 Replies
 
 

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