@Diane,
** Good grief you've had so much to deal with! Prednisone is an absolute miracle drug isn't it? Too bad we can't take it day after day because of side effects. The only drug that can make me feel like I don't have RA.
** You know, it's just an idea but I've been dealing with sleep apnea so many years (w/no real success) that the chronic day fatigue got SO bad I'd start to fall asleep standing at the kitchen sink doing dishes. A few sleep studies later, we discovered I was not getting ANY good sleep. ( REM/restorative sleep) What a shock!No wonder I was so tired I could barely stay awake ever. The new sleep disorder DR said YOU MUST get at least 30 minutes exposure to bright sunlight before 9 am every day. What do you know - I needed it so badly. Day One I felt like I was melting into the floor just a few hours after
my spell in the sun. I slept a solid 6 hours of what felt like dream sleep,woke up feeling like someone who rose from the dead. It took time for recovery, one day at a time I improved. The retina must have some bright sun so your body can make melatonin...essential to healthy sleep. Without it you can't
get any deep sleep & the whole thing become a horrible vicious circle. And I
had to quit medications that interferedwith noaldfdd
I also had to stop taking any medicines that provoke the sleep cycles. It was true about that melatonin. The very 1st edh7