Noddy24 wrote:Lady J--
I have no direct experience with fibromyalagia, but I know from several friends that it is a life-changing ailment. Please share any information that you come across.
I can't cite a source for my hunch, but isn't carrying extra weight with fibromyalgia risking extra pain?
Noddy,
Thank you. I will be happy to share. I have only been diagnosed with fibro for the last 4 years, but my doctor and therapist both conclude that I have most likely had it, lying in a remissive state, for most of my life. The sleep disorders part can be recalled and confirmed back to as early as the age of two when I would beg for tryptophan rich foods from my mom before bedtime. I wasn't just being ornery, I really could not sleep. As far back as I can remember personally, I was always waking during the night, getting up, wandering around the dark house, sitting on the kitchen floor playing with the dog or even just going into my parents bedroom and laying on the rug next to their bed for hours.
That was the beginning anyway. So as not to bore everyone all at once, I'll save more for later.
In response to your comment about carrying extra weight contributing to extra pain, I'm sure it is. Many fibromyalgics actually gain weight due to the more sedentary lifestyle and their physical limitations. Once I began medicinal therapy, I actually lost about 30 pounds, mostly due to lack of appetite. If I'm not hungry, it is really hard to get me motivated to eat and I was down to about 125 at one point on my 5'8" frame. At 141 I am supposed to be at my ideal, both in weight and BMI, but like I said, I feel better 10 pounds lighter and am working towards that again.
Quote:Today I left for my appointment in a cloud of dust. (This was through no fault of my own--in fact I had spent some energy in organizing a leisurely departure). I shared the road with several self-focused drivers. One pulled out in front of me from a side road and another tried to beat the light.
Still I was "late" for my appointment and spent only about two minutes in the waiting room.
Blood pressure 128/72.
My stress test was normal. No more beta blockers.
My doctor gives credit to the extra cycling, but reckons relaxation techniques won't hurt. He knows what I'm dealing with with Mr. Noddy's dementia--his father died of Alzheimer's--and he's kept current on health problems of primary caregivers dealing with dementia senility.
You do an amazing job, but what a toll it takes. I am glad that you do find some respite now and then. Learning to relax and to let go of tension and worry and stress is one of the hardest things for someone like you, who has always been the coper, the giver, the listener, the shoulder, the advisor. Everyone's strength. I am happy you have a good doctor who not only knows what you are going through with Mr. Noddy but understands it as well. He must be a gem.
Happier still am I that you ARE looking out for yourself now as well. I'm sure its been a long time coming. I keep you in my thoughts all the time.