Hey Noddy
Not sure what to say....would like to say a lot of stuff...but you know it already. I guess, just would like to say to try and ensure that what others see and hear in the short space of "visiting" time that the nurses/professional/whoever visit.... that they don't just see and hear, but that they see, hear and act upon it.
I think you'll know what I mean - it's easy for the good intentions of those who CAN do something about the difficulties you can and will be facing with Mr. Noddy - but it's en entirely different matter THEM, those people who ensure the "powers that be" listen and respond to the difficulties.
From my "baby"......to your "baby" - the age is irrelevant in these matters - it's making sure someone helps those decisions to be made. Please don't let anyone just walk away from what you are saying to them and what they can then do about it. Whether the "difficulty" is 10 or 100 years old - the outcome on us as we try to deal with their difficulties - can be the destruction of ourselves. I know you are too wise to allow that to happen - whisper, talk, talk loud, shout if you have to - please make sure they all hear you.
See - I know what I want to say - my 100 words to your 10 words.... but I think you'll understand what I'm trying to get across. I hope.
I suppose - I just wish you to know also I'm thinking about you.
Take care.... and Happy Tumble Drying!
Hold yours