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Inflammatory Breast Cancer

 
 
Reply Wed 3 Sep, 2008 11:46 am
Hi guys, I just got an email with a news report that I wanted to make sure you've all heard about.... Sorry if you've been bombarded with this already, I know it's making the email rounds, but it seemed worth posting anyway just in case!

It's a six-minute news report; I think it's worth watching because of the video of what inflammatory breast cancer looks like-- there's a text version on the news channel's site too, but it doesn't have any pictures, so that's not very helpful... You really want to see what this looks like, because apparently a lot of doctors don't recognize it and think it's just a bug bite.

Anyway, here's the link: http://www.komonews.com/ibc/
there's a list of videos on the right, the first one on the list is the one I watched...
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Type: Discussion • Score: 3 • Views: 2,107 • Replies: 10

 
Bella Dea
 
  2  
Reply Wed 3 Sep, 2008 12:17 pm
Great, one more thing to worry about.
Mad
It baffles me that doctors and CANCER CENTERS don't know about this.

I suspect it's a recent thing (in the last 20-40 years), that's cropped up due to our lifestyles and the state of our environment. *sigh* It's just not fair. These women could have been saved. At least now there is a growing awareness and those women did not die in vain.


ossobuco
 
  2  
Reply Wed 3 Sep, 2008 01:03 pm
@Bella Dea,
What do you mean they don't know about it? I've read about it for years.
cyphercat
 
  2  
Reply Wed 3 Sep, 2008 01:30 pm
@ossobuco,
She's referring to how much difficulty the reporter who did this story had in finding information from cancer centers--she called several hotlines and the representatives didn't know what it was, the Susan G Komen foundation website wasn't very informative (they've updated it now), etc.... She talks to quite a few women whose doctors didn't know what they were looking at and misdiagnosed them. Good that you've known about it, but apparently it's not as widely understood as you'd hope.
ossobuco
 
  1  
Reply Wed 3 Sep, 2008 01:34 pm
@cyphercat,
Ok, I get you. Wonder who those reps were. And I agree the appropriate doctors should know about it.
0 Replies
 
theollady
 
  1  
Reply Wed 3 Sep, 2008 02:55 pm
@cyphercat,
Thank you Cyphercat- for the info, this is new to me.
0 Replies
 
CalamityJane
 
  1  
Reply Wed 3 Sep, 2008 04:52 pm
That's why it is so important to have a yearly mammogram exam -
and I happened to have mine today. Very Happy
0 Replies
 
Miller
 
  0  
Reply Wed 3 Sep, 2008 05:17 pm
http://www.cancer.gov/cancertopics/factsheet/sites-types/ibc
0 Replies
 
chai2
 
  3  
Reply Wed 3 Sep, 2008 05:53 pm
I didn't know about this cypher....thanks

cj, it doesn't show up on a mamogram or self examine.
cyphercat
 
  1  
Reply Thu 4 Sep, 2008 01:08 pm
@chai2,
chai2 wrote:
cj, it doesn't show up on a mamogram or self examine.


That's just what I was about to say--that's the problem. Confused

Just keep an eye out for inverted nipples or swelling-- there's a lame joke in there somewhere, I can't come up with it...Where's Gus?
0 Replies
 
Miller
 
  1  
Reply Sat 6 Sep, 2008 07:11 am
@chai2,
chai2 wrote:


cj, it doesn't show up on a mamogram or self examine.


MRI with tracer tags will pick up many hot spots missed on a mammogram.
0 Replies
 
 

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