Thu 24 Jul, 2014 03:57 pm
This is a personal story, mostly of gratitude and somewhat a rant.
I have HEPC. I've know this for 15 years. Yes, I did drugs in the late 60s. It was a stupid thing to do. I have lived the last 15 years wondering when it was going to kill me. I have to say it hasn't affected my lifestyle much, if at all. It's hard to tell whats just getting old vs. the HCV.
Some of you may be aware of the recent breakthroughs in treatment. A new drug Solvadi, is very successful. It has a 90 percent cure rate. When used with other drugs it goes up to 95 percent.
The problem is the drug is very expensive. $1,000 per pill. The treatment is 12 weeks, so 84 pills. $84,000. There is a lot of profit in this. The actual 'cost' is lower.
I am very lucky. I am in a drug trial. The drug maker pays for everything and even pays me for doctor visits. Their purpose is data gathering. It's not a clinical trial so there are no placebo groups. Everyone gets the drugs.
There are 400 people in this trial and 20 in my local group. After 4 weeks I am virus free and my liver is normal. Of course the next question is, will it come back when I quit the drug. I will find out in the next few months.
Now the rant. I just saw a news report when someone was complaining about the cost and the consistent question, who pays? He didn't think he should have to pay to save drug addicts, etc.
If this fellow has a heart attack, can I review his eating habits and exercising routine before treatment?
I would bet that bad behavior is a significant cause of medical treatment. From poor health to auto accidents.
All this just highlights the need for a single payer system in the USA. Who care these people who think THEY get to decide who gets medical treatment?
Obviously, I have a new found respect for drug companies.
I agree with you, but I've long been for single payer, and possibly for government run hospitals (besides the v.a.), as Robert once described that they have in Costa Rica. Not sure about the pros and cons of gov hospitals, but I am probably for them happening..
I'm so glad this particular treatment is so far working, and wish the company and the patients much success. Hell of a cost if you are left somehow to pay it all forevermore. I'm guessing it's a "pre-existing condition" to insurance companies, but I dunno nuttin' about Obama care and that kind of condition.
I am very grateful for the treatment and not for having to fight with the insurance company.
And it's a help that this situation isn't the clinical trial scenario, which of course it's a predecessor for. I'm solidly for well done double blind clinical trials, they're a must, but it must be tough sometimes being part of one.
I think it's past that point. Solvadi is FDA approved. The trail I'm in is for simeprovir, which is used with solvadi. I believe the purpose is to determine the effectiveness of the two together. I'm not in the medical field, thats for sure. I just know what Ive read.
There are a few companies trying to get on the bandwagon with solvadi. There is a lot of money involved.