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Knocking on heaven's door

 
 
wandeljw
 
  4  
Reply Wed 10 Mar, 2010 10:02 am
@dyslexia,
I forgot to mention the healthy routine that I follow each morning since I turned age 55.

At 6:00 a.m. I completely empty my bladder. At 7:00 a.m. I have a good bowel movement. Then, at 8:00 a.m. I get out of bed.
0 Replies
 
Rockhead
 
  2  
Reply Wed 10 Mar, 2010 10:55 am
been thinking...

reality has to be cut with fantasy or illusion to be tolerated.

all of us do it.

if you don't the bleakness of it all would overwhelm us.

the key lies, i think, in being able to blend your own reality, however bizarre or incubating, into the real one.

some folks decide to honor their own reality over the true one. some folks just color theirs to shade what they don't wish to see.

the perspective to see and understand both is difficult to achieve.

Now I think I'm going to go choke down some oatmeal...(i love it, i do. really)

Izzie
 
  6  
Reply Wed 10 Mar, 2010 01:17 pm
Finn dAbuzz wrote:


It is a matter of choice.

The simple physical act of smiling, even if forced, can trigger changes in your brain chemistry that equate to positive emotion. How much more powerful is laughing, having fun, engaging in affectionate gestures with the people you love. You can, if you want, push yourself into a more positive place.

However, whether we call it self-reflection or self-indulgence, the choice of preoccupation with self is one we make not because we are too lazy to pursue joy, but because we find it somehow desirable to be wrapped up in melancholia, to be absorbed in our selves.

The key, I suppose, is that if you lean towards the light, you shouldn't allow those who lean towards the dark to bring you down.



It’s not so easy as that...

I know how close to the edge I get and it isn’t a case of being caught up in a drama or wrapped up in melancholia

Far from it " the people who know me and have met me know different. Simple would be a huge achievement - sometimes it doesn’t work “simply” " because you can’t control external factors or control all aspects of your health " no matter how much you ‘will’ it or want it to work. Some you can, not all.


I’m not reading this thread the same way now " it’s taken over 2 years to speak about some things, so here’s as good a place as any to try and get it understood from the another side.

It’s not being miserable and melancholy. It’s a very real feeling and hard to explain.

You see, it’s hard to imagine not having your life " you know what you have, you know in some ways what you’re capable of, you know that maybe if you pushed just a wee bit harder you could get “more” from life - (I'm talking physical restrictions)

So, tho this is not how I’m feeling right now " it is how I’ve felt and it’s there, right on the edge

There have been many times over the last 5 years that, getting to a point of no longer caring, was there. Where you go to bed at night and it’s not a conscious “not wish” to wake up, it’s just, if you didn’t wake up... well, that would be OK. It’s not suicidal thoughts or the opposing thoughts of how you could improve your life " you’re simply “thought out” " when you don’t wish to think any more, you don’t want to contemplate the next 10 days or 10 months or 10 years " just, it is like knocking on heaven’s door... and if the door opens... well, you can just wander through and you’d never have to think or feel again, you wouldn’t feel tired again of the fight, whatever the fight is " health, family, whatever it is. It's tiring. Pain is tiring.

It isn’t about residing in a deep abyss, or wallowing in self pity, and thinking that everything is so awful in your life " because it isn’t, you know it isn’t " and it’s not about pretending to be positive and upbeat and “oh what a perfectly happy little life I lead” because life’s just not like that either, not all the time " it isn’t about those extremes " it’s just about having to think and whether you wish to think about anything again. I guess it’s the most incredible selfishness really, to actually not have to want to think about anyone or anything again.

I can sit here and cry as I write " coz I know that if I weren’t here my family and friends would be distraught... but you know what... there have been times, many, when I woulda wished that truck coming towards me had taken me out, or my car tyre blew out and I wouldn’t have known anything about it, or simply, that I just didn’t care whether I woke up or not. Not suicide. Just... no longer caring and fate taking a hand, relieving me of the responsibility. It didn’t mean I didn’t love my children or family or friends. It didn’t even mean I wanted to be dead. It just means that you get to point that... you no longer care. The point was reached.

Then it usually levels off again - the pain becomes a little less or the rollercoaster is a little smoother.

You still get up every day, shower, put your makeup on, grab your Eleanor Rigby by the door, go to work, meet friends, smile, laugh, cry, whatever... just regular life... you take your pills to make sure you’re doing what you ought to be doing and to try and fix your body up so that it can move the right way " trying to improve your life... you can still get joy at every stunning sunrise and every beautiful sunset, you can see the world thru wondrous eyes...every sound, every colour, every single dew drop and rainbow, but sometimes you reach that point where... it’s not that those things don’t matter or aren't important " it’s that your life no longer matters to you. It matters to everyone else " it just doesn’t matter to you.

You don’t have to be old and sick and dying.... or young and sick and dying.... you don’t need to have had horrible things happen to you in your life or huge obstacles to have overcome, it’s not about being lonely and depressed or angry and frustrated " your life can be so good in so many ways, fulfiling, happy, thrilling, normal, steady, calm - and you can mean the world to people and be loved and love back " but when things get to “that point” where you’re simply tired " you’re just tired of life throwing things your way and you’re tired of being sore and hurting, and right, life ‘aint fair and everyone just has to get on with it " and you do " you get on with it " but you can still be of a mind where if heaven’s door opened, you still may wander through. It's not that you don't have everything to live for, it's that everything to live for can be, at times, very tiring.

I don’t think it’s madness, it’s not depression " perhaps it could be seen as the easy way out " but it’s not, there’s nothing easy about leaving those you love behind....it’s not that you even want to do that, but when those who love you see the pain you are in, and you see how much it hurts them, and you KNOW it’s not going to change " well... that point can be reached.

So then you get to a point before that when you cut out the people in real life so you don't have to let them see your pain. Like Bill's Grandfather. Or perhaps you don't have to be old and dying. Perhaps you cut out people in your real life so you don't have to see their pain watching you as you struggle.

There are times I had to watch my child cut himself to pieces and I couldn’t stop him. I watched him attempt suicide once and I stopped him. There are times I wondered whether all the other times he hurt himself, daily, or when the school found him that day, whether to go through what he did was just too cruel, whether dying would have been easier for him. Can you imagine saying that? Can you imagine even thinking that? Wondering if death is more acceptable than that sort of life. Where does quality of life come in? At what age and who chooses what the quality should be? Who controls that? Of course, many people live in depression or have problems or disorders that other people say don’t exist.... but that’s not the point either.

You can talk to people to gain perspective " but perspective only comes if you can erase those images in your head and put it somewhere where it doesn’t hurt you. Perspective about whether you should care enough whether you live or die is non-existant - because it's en entirely personal conclusion. No-one would wish you to die unless you are in horrendous pain etc... we get some kind of ‘relief’ when those we love or learn about, after enduring horrible suffering, have died... but the suffering can start way before for the final outcome.

We only wish for the physically sick and deathly people to die. We don’t wish for the mentally sick to die. Yet... watching someone hurt every day mentally.... that’s no less painful that seeing someone in pain physically and a pill can’t always alter the mental pain, just like it can’t always cure the physical pain.

Not for my kid anyway.

So, you keep hoping, and praying in some odd way, that a mental illness will improve or a reasonable quality of life can be found. And when you’re physically sick you hope and pray that someone will come along with a new pill, or a cure or something and it will get better, or make it easier, or more tolerable.

Better for whom, if that doesn’t happen?

Today we live ‘til, on a real good stretch, just over a 100.... however, life at 18 could already feel like a lifetime already. Age is relative too...

I think it’s when you get past the suffering stage, that’s the teller.



I know I have a truly wonderful life. I do, I know I’m blessed. I can go on and have an ever better life if my health does not deteriorate " and even if it does, I can still keep going because that is a choice I make and I don’t want to give up yet. I want to live a long time with those I love.

That doesn’t change anything to do with my child tho. No matter how positive or good my life may be, which of course does affect my youngest child, it will make no difference to my eldest child. I cannot teach him, I can’t help mold him, I can’t rewire the negative threads he has. I cannot make it right. I cannot change or make those decisions go away. I cannot stop what he will do in the future. I cannot make a difference to his future nor can I control anything he does. I mean in a mental sense. Not in a controlling what a child does sense.


“at what point does one just stop caring? Does everyone have a limit which, when crossed, quits?”

What point do you have to stop caring about what someone else thinks or does, and just do what you think is right or best for you? At what point do you just call it quits?

For your own sanity.

At what point do you say I am not a mother, father, brother, sister, daughter, son, husband, wife, partner, friend etc... I am responsible only to me - I have to only think of myself?

That could mean you may will yourself to die, you choose not take medication, you let nature take it’s course " which can be ugly and cruel, short or long.

It could also mean that you stop caring, you choose to live on, you let nature take’s it course and enjoy everything there is to behold in your life, but you simply stop fighting for what you believe in because if you fight you will be broken; if you stop caring it cannot break you.

It could also mean that you get on with life, take your meds, roll along, live life to the max of your capabilities and wait for your time to come " acceptance that it will.

It could mean that in a very proactive way, you’ve called it quits in advance " you’ve made a living will " you’ve chosen to die at your time should things turn around on you again " you won’t fight, you’ll let go and be at peace.

Who is to say what’s right or wrong? If someone commits suicide " it’s seen as wrong. Having stopped my child doing that " I consider it was the right thing to do so I would say suicide is wrong in those circumstances. Yet, we can choose not to take medication or refuse medical treatment and tho that will hurt those that love us, couldn’t it be that the decision to call it “quits” is better in the long run. Is it being selfish to say “I’ve had enough” even when people want you to go on and fight it and “you have everything to live for” talks. It’s making a choice and trusting other’s, those near and dear, will understand that the choices you make are to be respected.

It’s hard to watch someone in pain, but it’s harder to watch the person watching you who is helpless to make it better too. My parents had to watch my pain at times. At times I think it was harder for them than it is for me. Just as is it harder for me to watch my child’s, than perhaps it is for him to use a knife. Now, they don't see me, I don't see him. Is the pain better or worse. Who knows?


Making choices about when you’ve had enough will be biggest choice you ever make, it can also bring you peace with the battle you have in your head about it.

The point is you can be a normal, every day run of the mill average person whose had a few issues to deal with, big or small, (that’s just all relative how big or how small), and you could know others who have endured far worse and your issues bear no comparison. We all live in different worlds. It’s not that someone’s life is better or worse or who’s got the biggest story or who shouts loudest, there’s no competition.

We all have to live in the skin that we are born in and if that skin gets torn and twisted, gnarled and doesn’t fit, you can’t take it off. You can deal with circumstances, you can address issues, we climb our figurative mountains and we can be blind, deaf and some us can be dumb " we learn to adapt " and when you no longer have the will to adapt " you reach the point. I think everyone has a limit.

I hope and pray that no-one I know and love reaches their limit. If they do, then I’ll hope to be there for them and hold their hand.
georgeob1
 
  5  
Reply Wed 10 Mar, 2010 03:39 pm
@Izzie,
Izzie, I read your post attentively and with care. You are dealing with some burdens that I haven't experienced, so it is difficult for me to offer meaningful comment. The closest to which I can relate is a sister, whom I love very much, who has Alzheimer's disease, now in a fairly advanced state. The mixed emotions one experiences ,occasionaly relating to one you know and love, and at the next moment encountering a gulf of lost memory and understanding that can't be bridged, have many of the characteristics that you related. The finality of a condition that will ultimately annihilate her memory and then her life is ever present in one's mind. I spend a couple of days with her each week and encounter a flood of conflicting emotions similar to those you described. At other moments, I am both very glad to have done it, and glad it is over. My burden in this is likely very small compared to yours, but perhaps it gives me a taste of what you expressed.

In the first place such conflicting emotions, even the feeling of complete detachment from those close to you - the feeling that you could walk away from or let go of it all - are not at all uncommon. I think most of us have them. In some sense they balance the other strong attachments that bring you back. We will all spend quite enough time dead, so utimately those dreams of self annihilation will be fulfilled. Until then we live, and while living experience both the sweetness and pain of life.

You offer a very warm-hearted and uplifting personality here on A2k, and it may not occur to you how many people have been - perhaps in just a passing way - helped and a bit restored by those qualities. It's likely the same and much more significant in your real personal life. It's easy to forget all this, and to fail to take satisfaction in the good things and influences we bring to others. I think that is something you should contemplate along with your other preoccupations.

Take care of yourself. Do as much good, and as little harm, as you can - and take pleasure in the doing of it all.
Rockhead
 
  1  
Reply Wed 10 Mar, 2010 03:43 pm
@georgeob1,
very well stated, ob1.

thank you for sharing your views and experiences here...
0 Replies
 
Mame
 
  1  
Reply Wed 10 Mar, 2010 03:53 pm
@georgeob1,
georgeob1 wrote:

You offer a very warm-hearted and uplifting personality here on A2k, and it may not occur to you how many people have been - perhaps in just a passing way - helped and a bit restored by those qualities. It's likely the same and much more significant in your real personal life. It's easy to forget all this, and to fail to take satisfaction in the good things and influences we bring to others. I think that is something you should contemplate along with your other preoccupations.
.


So true, so true, and I am happy you shared that with her. She is a total doll (as are you, of course).
Mame
 
  1  
Reply Wed 10 Mar, 2010 04:02 pm
@georgeob1,
georgeob1 wrote:
I do enjoy teasing and needling those I like.


Truer words were never spoke.
0 Replies
 
Finn dAbuzz
 
  3  
Reply Wed 10 Mar, 2010 04:23 pm
@dyslexia,
dyslexia wrote:

gabby hayes may ride a mule but he still thinks you're an ass.


Glad to know Gabby's funk isn't so deep that he can't be stirred to crack wise.
0 Replies
 
georgeob1
 
  1  
Reply Wed 10 Mar, 2010 05:11 pm
@Mame,
Mame wrote:

She is a total doll (as are you, of course).


I am a complete sucker for sweet women .... and those with funny accents.
CalamityJane
 
  1  
Reply Wed 10 Mar, 2010 05:20 pm
@georgeob1,
Yeah, Mame has a funny accent, doesn't she?

I have to come back to say something to Izzie's post, but I got to pick up my child from school....later.
georgeob1
 
  1  
Reply Wed 10 Mar, 2010 05:22 pm
@CalamityJane,
I was going to include assertive broads from Upper San Diego, but decised no one would understand.
Mame
 
  1  
Reply Wed 10 Mar, 2010 05:47 pm
@georgeob1,
I would understand!

And I don't have a funny accent - CJ does!
georgeob1
 
  1  
Reply Wed 10 Mar, 2010 05:50 pm
@Mame,
OK, drop the Upper san Diego bit and I've got you both either way.
Mame
 
  1  
Reply Wed 10 Mar, 2010 05:51 pm
@georgeob1,
Your accent is quite pronounced too, you know, so three's a crowd.
georgeob1
 
  1  
Reply Wed 10 Mar, 2010 05:58 pm
@Mame,
Ya' know Mame, you are relentless. I'm still sore about the stealth payment for lunch - (finally figured out it was you). We do all have some things in common - perhaps that's why we get on so well. However, I'm not as 'in your face assertive' as you and Calamity.
0 Replies
 
Finn dAbuzz
 
  4  
Reply Wed 10 Mar, 2010 06:43 pm
@Izzie,

Izzy

I don't mean to suggest that how one reacts to suffering depends upon so simple an act as declaring for the light or for darkness. Because how one responds to suffering amounts to a choice doesn't mean that the choice is easy or that it doesn't have to be made every day or every hour.

I'm also not suggesting that reacting one way is necessarily easier than another and I hope I was clear that I don't believe that to focus inwardly is tantamount to self-pity (although clearly it sometimes can be).

It's clear that you have experienced suffering and it really doesn't matter if the circumstances that caused your suffering are somehow "worse" than anyone else's.

Believe me, I'm not suggesting that you simply "snap out of it," and I respect that your choice may be to follow the spiral down to oblivion. It's your life to live or end as you see fit.

I just don't believe that if you do focus on your suffering or you act on a desire, not for death, but to no longer live, you will have not made a choice.

It may be the choice your nature leads you to and it may be a choice which your nature rebels against, but it's a choice that you control.

I think you appreciate this to, at least, some extent, because you acknowledge the existence of choice throughout your post.

I don't think any of us needs to relate the specifics of our personal sufferings as an admission ticket to this thread. I myself have had no shortage whether personally or through my loved ones, but I don't think I need to detail them to achieve authority, and if I do, then I'll just bow out of this thread.

This is not to say that everyone who recounts their suffering is playing a strange game of "Top This," but I do think that the desire to recount is reflective of a mind set that has helped in leading them to their individual choice.

We each have a nature that when faced with problems, stress and strife has a natural tendency to withdraw within ourselves or reach out to others.

Perhaps some believe we are slaves to such genetically formulated natures, but I believe we possess the ability to transcend our nature if we choose to. Clearly it's not an easy matter to choose against one's nature, but I maintain that it is possible.

Having said this, if someone chooses to embrace one's nature it isn't an implication of weakness.

I know someone whose nature is incredibly positive. It is easier for her to see the world through rose colored classes than to turn a critical eye on it. This isn't the ideal state of being. She is continuously taken advantage of, and she knows it. She has made the choice to keep her rose colored glasses firmly in place and accept the negative consequences they produce. Was this the easy choice? I don't think there's relevance to that question.

I'm not arguing that one response to suffering is the right one and the other is wrong. I have my own opinion of which is the best for myself and for others, but I've spent time in the other place and I know how alluring it can be. For me, my choice is very difficult and not without moments of doubt, but it's the way I've chosen.

My primary argument here is that we are not flotsam and jetsam on the sea of life. When we float into dark waters we may decide that we should surrender to the maelstrom, but we can also decide that we should remove ourselves from its grip, no matter how hard the task may be.

People will embrace the darkness if they choose to. There's nothing that can prove this isn't the best course. - just don't think they should explain their choice as helplessness.

dlowan
 
  1  
Reply Wed 10 Mar, 2010 07:12 pm
@georgeob1,
What a lovely post!!!
0 Replies
 
CalamityJane
 
  2  
Reply Wed 10 Mar, 2010 09:53 pm
@Izzie,
Izzie,

Yes, life isn't fair and some of us have their plate fuller than others. The heartache of dealing with a mentally challenged child is something I only can
imagine. It comes with tremendous suffering for all involved, no one would
dispute that.

I might be wrong, but I also read guilt and blame in your post. You seem to feel guilty and blame yourself for something you have no control over. You have made a decision and don't know if it was the right one. At the time it must have felt to be the right decision, otherwise you would not have done so and agonizing over it later on, is mostly counter productive. You have to rely on your intuition and know how to trust yourself.

I am a firm believer in Albert Ellis ABC theory
A = activating event, meaning the factual events that take place in your
life you have no direct influence of as in your case the mental illness of your
son.
B = belief, meaning the interpretation you form of these specific events (A)
influence your belief (B) which brings us to
C = consequences. You suffer the emotional consequences solely based on the belief you have developed.

Many times, we cannot change (A) but we can change (B) in order to alter
the outcome of (C).

Here is an example: My boss tells me that my work is incomplete and he's
unhappy with my performance (A) I feel very inadequate, like a loser (B)
and get depressed and feel great anxiety of losing my job (C).

Let's change the scenario slightly: My boss tells me that my work is incomplete and he's unhappy with my performance (A) I feel I did my best
and put every effort into this job (B) . I am disappointed but confident that
the next project will be better (C).

Two approaches to the same problem - one with negative outcome, the other more positive. The choice was mine to make. This is what I wanted to convey:
we make a choice in life in how we cope with things.



0 Replies
 
Diane
 
  1  
Reply Thu 11 Mar, 2010 03:53 am
@Izzie,
Izzie, even though I seldom post on a2k, I have always been thankful for your posts because of their compassion and respect for the individual. You have the rare skill of being able to let the other be who he or she is without judgement or well-meant advice.

You are human and see the humanity in others.

You are a wise, wonderful woman.

0 Replies
 
High Seas
 
  1  
Reply Thu 11 Mar, 2010 09:00 am
@Rockhead,
Rockhead wrote:

..reality has to be cut with fantasy or illusion to be tolerated....
[...]
....some folks decide to honor their own reality over the true one.

The second statement is unquestionably true - but is the first one? And even if it is, does encouraging delusions help or hinder the afflicted?
 

 
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