@CalamityJane,
The thing is...
as Dys has opened a knocking door...
one can be blessed with a great many things... hardship isn't always about not having material things, cars, house, money... or good health... there are so many things that can be wonderful and good and positive, rewarding... without those things, or with ill health
but the one thing I can't control is the way I feel about my child
you know, I would give everything to have some control on that one feeling - not to have made a choice on the welfare of one child over the welfare of my other, not to have made that awful choice. I will never know if I made the right decision. I can turn it either way - right or wrong. It will never be right.
I know it's a choice now on how to deal with it or live with it - at the moment... I don't know if I can do either.
dyslexia wrote:
Do the medications I take ritually alter the person I was? Are my thought really my thoughts or are they the chemicals that course and curse throught the membranes of my blood, my heart, my brain? Everything I am offered seeks to deliver me from me from the weight of who I was and lead me on another path of who I am becoming; a pharmaceutical somatic automaton.
pills, pills and more pills. It's a choice whether to take them. If you don't - you can die. Pretty much the same as you can step off the pavement and into the road and get knocked down if there's a car coming. It's a choice. When you 'live' taking medication to make life more bearable for whatever the reason - the choices lessen of the control you have over your life. Of course, your quality of living can improve, which is the aim, but you lose control of "normality" because those boundaries change all the time. Those people who are part of those changing boundaries... sometimes they go and everything changes again because illness can be a burden not just for the person who has it, but for the person who has to watch it.
Quote:I do need some sense of tomorrow but it is not a strong sense, it is not gravity; it is more akin to "do I buy the good tea or is twinnings adequate." Will I some day be able to tie my shoes or keep wearing the slip-ons?
Reality - it sounds so simple, it's so debilitating. You can choose to be positive, but being positive can be just as tiring as the illness at times.
Quote:I suppose I want to be remembered but I no longer know what I should be remember for.
If I were gone tomorrow, I know what my son would remember me for. I haven't seen him for nearly a year. There is no peace in that or getting the weekly carers email to tell me he wants to "end it".
Silent screaming... I finally found somewhere say it out loud.
Apologies Dys for doing it here.
I think we all have our hurdles - it doesn't matter what size they are, it's how you jump over them or knock them down... or maybe even sidestep them. Yep, it's about how we deal with them. I intend to enjoy the good things in my life and to make the most of every opportunity put before me. I miss my son tho, every day.
can't see for tears. gone from here now. will carry on sailing.
(Twinings
is the good tea)