I sincerely appreciate your postings and wish you every success with your concerns, I wish I could be more helpful!
I really do not know what to say, BBB.
This is just awful!
I don't know what to say either. This is so wrong!
((((((((BBB)))))))))
Good news about Rod
Good news about Rod
My son received a call today from Rod's wife and he has made a miraclous turn around.
The doctors think that Rod has a very rare disease called wilson's disease, where your blood and your body has too much copper in it. It can be treated and the patient will be on meds for life.
Now the university of colorado is trying to get Rod out of the bed asap so that they can get a paying customer in there.
This is such great news and we all are doing the happy dance.
BBB
Wilson Disease
Wilson disease causes the body to retain copper. The liver of a person who has Wilson disease does not release copper into bile as it should. Bile is a liquid produced by the liver that helps with digestion. As the intestines absorb copper from food, the copper builds up in the liver and injures liver tissue. Eventually, the damage causes the liver to release the copper directly into the bloodstream, which carries the copper throughout the body. The copper buildup leads to damage in the kidneys, brain, and eyes. If not treated, Wilson disease can cause severe brain damage, liver failure, and death.
Wilson disease is hereditary. Symptoms usually appear between the ages of 6 and 20 years, but can begin as late as age 40. The most characteristic sign is the Kayser-Fleischer ring?-a rusty brown ring around the cornea of the eye that can be seen only through an eye exam. Other signs depend on whether the damage occurs in the liver, blood, central nervous system, urinary system, or musculoskeletal system. Many signs can be detected only by a doctor, like swelling of the liver and spleen; fluid buildup in the lining of the abdomen; anemia; low platelet and white blood cell count in the blood; high levels of amino acids, protein, uric acid, and carbohydrates in urine; and softening of the bones. Some symptoms are more obvious, like jaundice, which appears as yellowing of the eyes and skin; vomiting blood; speech and language problems; tremors in the arms and hands; and rigid muscles.
Wilson disease is diagnosed through tests that measure the amount of copper in the blood, urine, and liver. An eye exam would detect the Kayser-Fleischer ring.
The disease is treated with lifelong use of D-penicillamine or trientine hydrochloride, drugs that help remove copper from tissue, or zinc acetate, which stops the intestines from absorbing copper and promotes copper excretion. Patients will also need to take vitamin B6 and follow a low-copper diet, which means avoiding mushrooms, nuts, chocolate, dried fruit, liver, and shellfish.
Wilson disease requires lifelong treatment. If the disorder is detected early and treated correctly, a person with Wilson disease can enjoy completely normal health.
Great!
Hope the meds aren't too expensive...
N-n-n-no chocolate?????
(Just kidding! So happy to hear good news!)
Oh phew! Doesn't sound like a great thing to have, but hell, it sure beats what could have happened.
Very happy news and I'm so relieved for you and your family, BBB!
Rod is now back home with my son
Rod is now back home with my son
After defing death, Rod was released from the Colorado university hospital and is now home with my son once again. The doctors have no idea what started the problem and are totally amazed with his come- back. They did biopsys on Rod's liver and many tests to locate and treat his liver illness and found nothing. Not even Wilson Disease as they originally thought he had.
So Rod will be recuperating at my son's home and then at his best friend's new home as soon as they get moved in. They are all relieved over what happened and the rapid come back for Rod.
BBB
