Chumlys Sadness

Chumly wrote:

Hi J_B,
They like to fling around terms like "idiopathic".

That's just a medical term for <shrug>

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littlek wrote:

So, you eat protein excessively and hope you get enough?

Well I eat more than I would likely need to eat if all was well, but the single thing that has made the biggest difference is to eat the cleanest, fat freest, dairy freest, additive freest, simplest, blandest, purest Chumly Chow that can be made at home.

This Chum Chow or less, more often than not, tames the worst of the symptoms, at least to date.

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Well, that's good. At least you have a handle on the diet (even if it isn't much fun)!

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Well, this does suck, chumly. Hmmm. If it's primary and you're older, I'm wondering if you have a slower version than with people who find out about it young..

Hang in there..
I'm glad you're in a big city with, I hope, some sharp gastroenterology/immunology/etc. types running around.

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You all might be surprised at the pharmacopoeia of drugs, probiotics and other oddball stuff I have tried to no, or questionable net avail, in contrast to the potential downside of the "cure" in question.

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That's rough, Chumly. Any one of those things would be difficult to deal with, and that's a whole lot on your plate at once.

Glad you've hit on a diet that seems to help...

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ossobuco wrote:

Well, this does suck, chumly. Hmmm. If it's primary and you're older, I'm wondering if you have a slower version than with people who find out about it young..

Hang in there..
I'm glad you're in a big city with, I hope, some sharp gastroenterology/immunology/etc. types running around.

The Vancouver people are some of the world's best. It has been speculated that it was latent congenital. I have my own speculation; I believe there was a pivotal environment trigger that I have not been able to identify, of course that does not preclude a genetic predisposition.

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I'd think the same thing, Chumly. That's the case in many/most ideopathies.

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sozobe wrote:

That's rough, Chumly. Any one of those things would be difficult to deal with, and that's a whole lot on your plate at once.

Glad you've hit on a diet that seems to help...

I saw a lot of dieticians and the bottom line is quite simply: eat clean, eat pure, eat simply. Practice the discipline of an elimination diet. Easier said than done in today's snack food / fast food world.

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Chumly wrote:

ossobuco wrote:
Well, this does suck, chumly. Hmmm. If it's primary and you're older, I'm wondering if you have a slower version than with people who find out about it young..

Hang in there..
I'm glad you're in a big city with, I hope, some sharp gastroenterology/immunology/etc. types running around.
The Vancouver people are some of the world's best. It has been speculated that it was latent congenital. I have my own speculation; I believe there was a pivotal environment trigger that I have not been able to identify, of course that does not preclude a genetic predisposition.

Chumly, you should get your family doctor to refer you to see Dr. Freeman out in UBC Hospital.

He's the gastro-enterologist specialist that found my cancer back in 1995. Good bloke. I can recommend.

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Chumly,

Very sorry to read of the difficulties you are facing. Losing a father, a close friend, and then discovering a chronic disease is certainly a major league dose of the awareness of one's mortality. That alone is enough to temporarily unhinge most of us. We all have or will face such things, and is is never easy. I wish you the best.

You appear to be dealing with it in the cheerful, lighthearted manner that has characterized your dialogues here - all very admirable. Moreover, externalizing these difficulties and sorrows, as you are doing, is - in my experience - a hallmark of one who will overcome and live on. I wish I could offer you something better than these words, but I believe you will make it.

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Thanks for the very kind words George, it's always great to chat with you.

Reyn wrote:

Chumly, you should get your family doctor to refer you to see Dr. Freeman out in UBC Hospital.

He's the gastro-enterologist specialist that found my cancer back in 1995. Good bloke. I can recommend.

OK, I give it a whirl, much thanks. Was the cancer issue resolved to your satisfaction?

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Chumly, dear, I'm sorry to hear of these difficulties that you are experiencing now. I'm not familiar with your condition. Is it possible it can be cured?

Be sure you follow your healthy diet. There is a positve side to this. You might become an expert at baking delicious homemade breads! Razz

I was out at a restaurant last night that makes delicious bread (which they serve you before your entree arrives). At about the same time, they served me my Caesar salad "starter."

I was thinking, "I'd be perfectly happy just having this Caesar salad and a couple of slices of this bread for dinner."

I always feel so much better when I just eat a light meal. Of course, if you need protein, it would probably be better for you to just have a piece of chicken or fish, along with a good salad or some steamed veggies!

In my book, that's a perfectly satisfying meal!

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Anything is possible but there is little probability for a "cure" nor it is of much importance or interest to the medical community in general being it so rare. You are (I hope) right that my very controlled diet has an upside. Sadly restaurant food of any kind is off the menu, I have learned the hard way it's not worth the potential downside. You cannot be sure how it's been prepared, no matter what they claim.

I am pretty sure if I had been born a few hundred years ago I would have died rather early in life, from mal-absorption and/or the effects of the then modern curatives.

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Well, even though there may not be a "cure" in the form of medication, I think you're on the right track, Chumly, and I'm betting your condition can and will get much better.

Does this condition make you have a sensitive stomach?

The reason I ask is, I was reading something about vegetables recently, that said people will often have an upset stomach after eating raw veggies (as in a salad). This is because there is always at least a small amout of bacteria in raw vegetables. Cooking them eliminates that bacteria, and that is why cooked vegetables don't upset the stomach.

(You don't want to overcook veggies, but even steaming or stir-frying them will eliminate the bacteria, while preserving the vitamins and nutrients.)

Of course, I think it's good to have veggies in their raw form sometimes. We need the roughage and fiber. But if it's tough on your stomach, you might do better with cooked veggies, and maybe just have a salad once a week or so.

Are you getting any exercise? That can help with the triglycerides factor. You don't have to do anything seriously strenous, even just taking a walk once a day could help.

Hey Chumly, with all this healthy eating, you'll be getting better in no time!

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Stray Cat wrote:

Does this condition make you have a sensitive stomach?

Way way worse than that, if you read up on the effects.

Luckily to look at me you'd swear I'm the picture of heath, which naturally has raised quite a number of eyebrows.

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And here I had heard that April was the cruelest month... sorry to see you getting hit from all angles at once Chumly; but maybe in some weird way it helps so you can't over-indulge in sadness or focus on any one item in particular.

Chumly wrote:

Anything is possible but there is little probability for a "cure" nor it is of much importance or interest to the medical community in general being it so rare.

The key moment of positive thought here being anything is possible. That can only help cheer you up, especially when looking at the advances made daily in the medical world.

Chumly wrote:

I am pretty sure if I had been born a few hundred years ago I would have died rather early in life, from mal-absorption and/or the effects of the then modern curatives.

That is another important item to remember. When I look at any health malady, I realize a century or so back I would most likely have died from it (or come darned close).

Hang in there guy and stay with the upbeat attitude.

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Thanks so much, I know you have your own burdens to bear, so coming from you, it has a undeniable directness.

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Woof, that all sucks. Hope you feel better soon, and that the other stuff devolves to the best possible results.

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Chumly wrote:

Thanks for the very kind words George, it's always great to chat with you.

Reyn wrote:
Chumly, you should get your family doctor to refer you to see Dr. Freeman out in UBC Hospital.

He's the gastro-enterologist that found my cancer back in 1995. Good bloke. I can recommend.
OK, I give it a whirl, much thanks. Was the cancer issue resolved to your satisfaction?

My situation is a bit more complicated than that. Let me explain.

In 1994, I had internal bleeding bad enough to put me into hospital, needing 6 units of blood. After that incident, I was sent to a series of doctors that did tests and never conclusively found out what was what.

My GP ended up sending me to Dr. Freeman (out at UBC Hospital Gastro-Enterology Clinic) who diagnosed the immediate problem due to an ulcerated stomach, probably due to excess stomach acid. I had also been having problems due to reflux acid, etc.

So, the immediate situation was fixed up by putting me on Losec (top of the line Rx) for the situation to clear up.

Over time, I kept coming back to him for follow-up stomach scopes to keep checking that everything was healing satisfactorily.

On one of these many trips, he had scoped into the exit of the stomach and found non-Hodgkin's Lymphoma (Aug 1995). I was shocked. Subsequently, I was sent to the Cancer Clinic to receive 20 treatments of radiation therapy.

Well, the situation was resolved due to the fact the cancer was caught early. I was not having symptoms (as far as I know) due to that. Once you do have them, you're as good as dead.

Due to the dilgence of Dr. Freeman, he spotted this problem while checking that my innards were free of my previous problem. So, I'm really grateful to him.

Follow-up check-ups have confirmed that I'm cancer-free.

The bottom line is that if you're having a gastro-intestinal problem, you should probably be going to the UBC G-E Clinic. While Dr. Freeman would obviously be my first choice, there are other doctors there, too. They do consult with each other to confirm diagnoses.

Ask your GP to refer you to them if you're not satisfied with your current situation.

info

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