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GI Disease and requesting dietary accommodations from college

 
 
Linkat
 
Reply Thu 5 Sep, 2019 08:14 am
My daughter has been diagnosed with GI disease from a gastroenterologist. Basically she has to be very careful on what she eats or she gets ill in the morning. Often times even when she is careful she still gets ill. Typically she gets severe stomach pains and often times resulting in vomiting.

She has minimized this with medication and diet - she also worked with a nutritionist to help her. The long and short is there is a lot of trial and error to determine what causes this to trigger it. She has found that having smaller more frequent meals, and staying away from a lot of different types of foods.

This year she is living in a house shared with 5 other girls - it is campus housing, but it is a house with a full kitchen so one would think there is no need to be on a college meal plan. We found out it is mandatory that all students be on a meal plan because apparently these 20+ young adults are incapable of being adults and feed themselves (summary of what campus housing explained to me). We can get a medical exception.

Next medical exception is insane. We had the form filled out by her primary care doctor - they denied it saying they needed it filled by the GI specialist. He was unsure how to answer some of the specific questions - these are written for any sort of special accommodation to fulfill any sort of disability. So instead he wrote a note on letter head.

They denied it saying it wasn't specific enough. That saying that she (meaning my daughter) feels like.... is not factual - this was in reference to the reason that most of the cafeteria food makes her feel ill - there is a lot of crap that they serve - lots of processed foods so basically she would eat salad and cereal , banana when she lived in the dorm previously due to the lack of quality foods.

The thing is we are not asking them to make anything special for her - just exempt her from paying $1,000 to the school for food she will not eat. And use this $1,000 to go to the grocery store and buy fresh food that sits well for her.

Any suggestions - I tried calling and left a message explaining that this sort of disorder is not specific so it is difficult for the doctor to give specific details - it varies from person to person.

I am thinking of moving up the chain of command because this is really ridiculous - these are supposed to be adults and should be able to prepare their own food if they have a full kitchen easily accessible - what is the point of renting a house? This is one reason why she wanted to get a house on campus.
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Type: Question • Score: 2 • Views: 255 • Replies: 4
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Linkat
 
  2  
Reply Fri 6 Sep, 2019 10:22 am
@Linkat,
So I tried to call the woman about this to explain that her condition is tough to detail out for the doctor and asked her to call me so we could determine what sort of details would could get.

She sent an email to my daughter rather than calling me back - you could tell in her response. Her email also came across very uppity - she said I understand your preference is to eat in your room - I wanted to respond to her telling her yeah she would prefer to prepare her own food as she would also prefer not have severe stomach pains in the morning and would prefer not to vomit in class resulting from food prepared in the cafe where she does not know if the ingredients will trigger this.
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Sturgis
 
  1  
Reply Fri 6 Sep, 2019 09:21 pm
Sounds like a lovely personality that woman.

Over time, I've discovered the average person is completely oblivious to comprehension of medical issues which aren't their own. When that person happens to be the person you have to communicate with, it surpasses any level of regular frustration.

Hope this is ironed out soon.
Linkat
 
  1  
Reply Sat 7 Sep, 2019 06:38 am
@Sturgis,
Hopefully it will work out. She made it sound as if it is rare that they allow someone to opt out of the meal plan - which makes no sense to me if they have a house, town home or apartment as these all have full kitchens. From what I have read, colleges want students on these meal plans because they are huge money makers. It might end up being something we pay for and get little or no benefit for - basically money out the door.

Any way they have this detailed questionnaire they want the doctor to fill out - so I called his office talked to the nurse and apologized saying I understand that the doctor has better things to do than this - I also told her if it helps I could "answer" the questions for him and he could take a read through and see if he agreed and would sign off on it - the questions were all ones I could answer as they weren't too medical related more around why she needed accommodations.

I also had my daughter contact the nutritionist to ask her to fill them out as well - I figure if anything I am going to bury them in paperwork.

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Linkat
 
  1  
Reply Thu 12 Sep, 2019 09:31 am
so my daughter got the details from the nutritionist and she stated that my daughter suffers from gastrointestinal distress. Despite no definite diagnosis, her symptoms include nausea, vomiting and gagging - all of which can impair student performance and attendance.

She received medical nutrition therapy regarding dietary interventions for GERD -, nausea and vomiting. She will be eating according to a therapeutic schedule (time-wise) and choosing foods that help minimize symptoms.

I recommend she be able to be exempt from the university's meal plan as she reports many of the available foods increase her discomfort. She requires autonomy in choosing her meals. If she is unable to be exempt, she should be able to request specific items.

The doctor just finished his form and I will pick up today - but my daughter had gone ahead and sent to this person.

They then set up an appointment for my daughter for the next stage where she meets with them and then they will meet with some guy at the dining hall to see how they can support these needs.

They must make a lot of money off these meal plans - because we just suggested they take her off the meal plan with having a full kitchen in the house she staying at - one would think this would be easier for the university than making specific meals or options available to her.

I told her whatever works best for you - as long as they can fairly accommodate you and it makes you happy and feel better I have no issue. We just offered what would seem easiest for all involved.
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