@ossobucotemp,
Sorry to take so long - first, I was thinking about what to say, since I'm really fine but could meander back in health history and current goings on and bore even myself, so I put off answering right away.
Next, I didn't see the thread come up again, and got involved in other threads.. bla bla bla.
But - thanks for asking, and I'll try to be as succinct as I can (or not).
~~ The easiest to describe: my eyes, subject of past threads when I tended to freak out, are very stable. I've stopped freaking out.
I've learned via a mailing to me from the first university I went to and they confirmed what I thought, that I have had Retinitis pigmentosa for some long time, but just didn't know it (night blindness, poor peripheral vision, changes in retina). Of those, I'd only guessed because of the night blindness, not so good as a kid catching fireflies.
However, that letter from UCLA asked me if I'd had any odd things going on (not their exact words) when I was born. I wrote back, yes - I was a blue baby. I take it that this may be why my RP hasn't been progressive, barely at all over decades. I'm still a fool walking by myself at night, but no worse now than years before. I still conform to having RP, but, from my researching, most people with it deal with serious decline (unless I haven't read better news).
Re the other stuff - six eye surgeries after a first messed up cataract surgery left me with one bad eye and one pretty good with just the RP. BadEye has blepharitis (uggabugga, but not worse), and glaucoma (traumatic), also stable now for some years. It also left me insurance poor, since I was still paying Bluddy Blue Cross a lot a month just to have it and paying for what they didn't, thus affecting life choices, like moving. That was pre my getting medicare, early as I could, the dumbest choice but I had to. Except for the last surgery, which I had put off from fear - I didn't want to have another debacle with the remaining non surgical eye.
By then I was in New Mexico and went to UNM. That surgery was at least semi picked up by Medicare, and my ophthalmologist is rather dear to me.
He lead the surgery crew in singing for me as the trickier part of the surgery on GoodEye was finished.
~~~ Really great and freeing change - my previous high blood pressure is way gone for at least a year now. I check it, of course, but it is virtually always just right.
Those earlier meds made me faint several times.. hitting the floor, including with blood, so I do not miss them. It was a mutual decision with my clinic doc. We weaned me for a few weeks, but it became clear I was better without them.
~~~ Next problem - Balance
I'm dealing with a neighborhood that was developed by an apparently idiotic or worse contracting firm. Worse, is my best guess.
Anyway, the road paving and sidewalk paving are almost funny here. I am now resorting to a holding a stick I like, to make me watch the ground harder.
You probably know I've years into designing paving/approving paving or not. Almost makes me laugh.
It's odd. I'm fine going to the Home Depot here, the paving ok, race or lallygag at our grocery store, but I have trouble on my own damned block.
It is also true that I am more iffy in space now.
I used to be an ordinary jogger.
Thank you for you patience, Set.
Be well yourself.