@jespah,
This is a long one, I apologize in advance, started typing, like a river it poured out!
Thank you, my son is amazing, and so resilient. He brings me so much joy and in him I know my purpose in life is great. What I do from home is fairy new, I make hand made home décor, refinish/repurpose household furniture, interior design. My health problems, leave me with days that I can barely move or move with immense pain, and on those days I can't completely rest, (because someone has to be a parent and do other things). Some days are good and I take full advantage of that. The work I do allows me to work at my own pace, on my on schedule, and the ability to go to my doctors appointments, I have a lot of them. So if I am having a bad day, I only do what I can, but still finish the jobs to make money. I could really knock the work out if he was willing to help me, or was willing to sit down to understand my vision. And help me with a business plan on a larger scale. Or, if he did some things to keep the house running, ya know. But right now, I am having to multitask everything, I start my work, get my son to school, was dishes, go back to my work, start laundry, clean the turtle tank, go back to my work.... ect. (I am not ocd, where my house must be perfect, but if my sons uniform clothes aren't washed for school that's a problem, or if the dishes are piled up, then come dinner time, I have to take and hour before cooking to wash them. leaving me with less time to work. I have asked for his assistance in re-guard to the financial brains of my business (he is excellent with numbers and math), he says, ya, acknowledging but never follows through. I have even told him about the potential for us to make sustainable income. He hasn't looked for work, he says, he wants to get his mental health in order first, because right now that's all he can handle. Which I am ok with, for a little while, as long as he really gives it go, understands he has to pitch in around the house and be a parent too. The fact he acknowledges he has mental health problems helps me feel positive. As I know, the first step to recovery is acknowledging and knowing you have a problem. I bought doughnuts this morning, while laying on the couch, he fell asleep holding the box with his hand on one of the doughnuts (like he was going to grab one). I took a picture of this, not to embarrass him, but for when we go to counseling together. Because, he is in denial of how badly he has gotten, acting like I am just trying to make him think he's crazy. I hope the picture will open his eyes, and especially to see, I am not trying to make him think he's crazy. His father is deceased, he was the one who held the family together, and would guide my husband. His mother's alive, she was a crappy/non existent mom when he was a child, which led him to juvie homes, and trouble with the law. Now, she is just like Canada. Impartial, offering no guidance, or support. In fact when she comes over to visit with our son, she just sits there to be waited on hand and foot. My mom is alive, I cannot confide in her about anything, she will just try to tell me I need to leave him and bitch. She doesn't work, I have asked for her to take my son for the day or a couple of hours, and she makes excuses. Or while my sister is at work she watches my sisters two kids, and complains three kids are too many. Which that might be true, but she could one day not watch them, to take my son. She doesn't view my job as work, to her it's a fun hobby, and I don't deserve to have her babysit for me, to have free time doing my hobby. Or if I ask her to babysit, she always asks why/what I'll be doing that I need one. Almost to see if it's a worthy reason to have her babysit. The resentment... we have never been "rich" but we have been good for the most part. Sometimes things have been tight, we've struggled due to only one line of income coming into the home. This is especially true for the past three years when my health took a nose dive. I applied for SSDI/SSI upon my doctors suggestions. I actually qualify for SSDI, I've worked enough quarters paying into it, but it takes a long time to get approval. I know once approved, two life sustaining incomes coming in will help. And, I can still do my work, but wont have to worry. Because, it does not bring in enough to support us, or if I am having a bad day, resting to feel better wont mean, a loss of income. So I think he resents we struggled while only he was working outside the home, trying to improve our financial situation to move up the ladder..... And I was not working. (Even though, I feel being a homemaker, is partly a job. Especially when he was asked to do nothing around the house at that time (don't think he would have done anything anyways on his own). He had his job, I had mine, which included everything plus more. Special meals before/after work/ break times, making his lunches, laid his clothes out, bringing him things to work, name it I did it. And his work hours were 6am to 1am or 3am, every day except Monday & Tuesday.) Once while slightly drunk, he told me, I brought nothing to the table, I chose to make my job homemaker, which didn't financially help us. He would've rather I got a job, bringing income in... And so what, when it comes to the household ect, at least we wouldn't have been struggling to make ends meet. He will live in a dirty house if it means we have extra money. He's right, in that being a homemaker doesn't reward you with an income, (Side note) unless you get divorced and file for spousal support.) But I thought we agreed I was applying for SSDI.
I have another concern, about one of my health problems. Since 2014 my liver has been in remission, its at a stage two. But I have seen how my liver can go from fine to, not fine. Then the treatments start, which last time left me bed ridden, puking every hour. The risk of increasing stages, means liver transplant, which is a really long waitlist, and all the possible complications. I know that's a lot of what if's... but that's being prepared for anything to happen. I am scared, what if something happens to me? Or I have to go through that again, or even worse? We have a son, I need to know he can handle his ****, and juggle if not all of it on his own.... Then almost all of it, with day care and other ways to assist. Thank you for taking the time to read this and your replies.