Just got in and read this. I hope it works for him, Bear. Truly, I do.
Stephen just had a big grand mal in the bathroom... so much for new f*cking miracle drugs.... at least with the others he had a honeymoon period.... ****...
I don't think any of us know what to say honey. I know that we're all wishing and hoping things get better.
*hugs*
Could tension in the house and change in the air be making him more vulnerable to the static in his brain?
I hope, he recovered soon ...
Bi-Polar Bear wrote:Stephen just had a big grand mal in the bathroom... so much for new f*cking miracle drugs.... at least with the others he had a honeymoon period.... ****...
Ah, shoot. What a let down!
It might take the drug a while to build up in his system.
Hang in there bear.
Oh Damn! Dadpad could be right though. Some drugs to take a while. Hoping for the best. He's had to put up with this crap way to long.
Bear, I urge you to contact Dr. Elizabeth Thiele at Mass General.
I wish you and the cub the best.
Damn! Any feedback from the doctor, bear?
Just found this and am so sorry, Bear. I can only imagine how frustrating this must be for you guys.
I wish you the very best in finding help for your boy!
(((((((Bear)))))))
Elizabeth A. Thiele, M.D., Ph.D.
Director, Pediatric Epilepsy Program
Associate Professor of Neurology, HMS
Epilepsy Service: Mondays
Yawkey Outpatient Center, 6th floor, Suit 6B
Administrative Asst: Christine Anagnos
Contact Number: 617-726-6540
----------------------------------------------------------------------------
Tuberous Sclerosis Service:
Fridays
Yawkey Outpatient Center, 6th floor, Suite 6B
Administrative Asst: Zaida Ortega
Contact number 617-726-0241
--------------------------------------------------------------------------
Clinical Background
M.D., Ph.D. Degree: Johns Hopkins University School of Medicine 1990
Residency: The John's Hopkins Hospital, Baltimore, MD; Children's Hospital, Boston, MA
Pediatrics
Fellowship: Children's Hospital
Neurology
Board Certifications: Neurology with Special Qualification in Child Neurology
Clinical Neurophysiology 1997
1999
----------------------------------------------------------------------------
Clinical Interests:
Tuberous Sclerosis Complex, Ketogenic Diet, Neurocognitive Aspects of Epilepsy
Affiliations and Profiles
Department of Neurology [Clinical Faculty]
Department of Pediatrics [Clinical Faculty]
Pediatric Neurology [Clinical Faculty]
Since this woman trained at Hopkins, why not search out a clinic at Johns
Hopkins?
How the cub been since the grand mal?
Miller wrote:Elizabeth A. Thiele, M.D., Ph.D.
Director, Pediatric Epilepsy Program
Associate Professor of Neurology, HMS
Epilepsy Service: Mondays
Yawkey Outpatient Center, 6th floor, Suit 6B
Administrative Asst: Christine Anagnos
Contact Number: 617-726-6540
----------------------------------------------------------------------------
Tuberous Sclerosis Service:
Fridays
Yawkey Outpatient Center, 6th floor, Suite 6B
Administrative Asst: Zaida Ortega
Contact number 617-726-0241
--------------------------------------------------------------------------
Clinical Background
M.D., Ph.D. Degree: Johns Hopkins University School of Medicine 1990
Residency: The John's Hopkins Hospital, Baltimore, MD; Children's Hospital, Boston, MA
Pediatrics
Fellowship: Children's Hospital
Neurology
Board Certifications: Neurology with Special Qualification in Child Neurology
Clinical Neurophysiology 1997
1999
----------------------------------------------------------------------------
Clinical Interests:
Tuberous Sclerosis Complex, Ketogenic Diet, Neurocognitive Aspects of Epilepsy
Affiliations and Profiles
Department of Neurology [Clinical Faculty]
Department of Pediatrics [Clinical Faculty]
Pediatric Neurology [Clinical Faculty]
Since this woman trained at Hopkins, why not search out a clinic at Johns
Hopkins?
The people at Johns Hopkins told me that BPjr. was getting the best care possible at Chapel Hill and to put my trust in them. this was several years ago.
littlek wrote:How the cub been since the grand mal?
he had another thankfully while sitting on the couch.
